PolicyRSSYesterday
President Trump signed an executive order on April 18 directing the federal government to speed up access to treatments for serious mental illness, including conditions that are hard to treat. This means the FDA and other health agencies will work faster to get new mental health treatments to patients who need them.
WHY IT MATTERSPatients with treatment-resistant mental illness conditions may gain faster access to new therapies through streamlined FDA review processes and accelerated approval pathways.
NewsRSS3 days ago
When you have a rare disease like Alpha-1 Antitrypsin Deficiency (AATD), taking care of your mental health is just as important as managing your physical symptoms. The article explains that doing things you enjoy—like visiting aquariums or crocheting—can help reduce stress and improve your overall well-being. Having fun and finding joy in daily activities is a key part of living well with a rare disease.
WHY IT MATTERSAATD patients often face isolation and emotional burden from their condition, so this article directly addresses how mental health support through enjoyable activities can improve quality of life alongside medical treatment.
AdvocacyRSS3 days ago
This article is a personal account from someone living with both Parkinson's disease and bipolar disorder at the same time. The author discusses how having these two conditions together creates unique challenges for their mental and physical health. The piece highlights the importance of addressing mental health alongside neurological symptoms in Parkinson's care.
WHY IT MATTERSPatients with Parkinson's disease who also have bipolar disorder often face overlooked mental health needs, as treatment plans may focus primarily on movement symptoms while psychiatric care gets deprioritized.