Rare disease news

FDA approvals, research breakthroughs, clinical trials, and advocacy updates

Curated and summarized by AI for patients and caregivers

🔍
AllDrug approvalsClinical trialsResearchGrants & fundingAdvocacy & policyPipeline
Show:All newsBreaking onlyImportant & breaking
Date:7 days30 days90 daysAll time

2 articles matching "glomerulosclerosis"

NewsRSS3 days ago

Test Your Knowledge About the Etiology of FSGS

This article is a quiz that tests your knowledge about what causes FSGS, a rare kidney disease. FSGS stands for focal segmental glomerulosclerosis, which means parts of the kidney's filtering units become scarred and stop working properly. Taking this quiz can help you learn more about the different reasons someone might develop this condition.

WHY IT MATTERSUnderstanding the different causes of FSGS is important because the underlying cause affects which treatments your doctor might recommend and how your condition may progress.
ℹ Good to knowFocal Segmental GlomerulosclerosisRead →
Clinical trialUNITERAREApr 5

New Recruiting Trial: An Open-Label Phase 2 Study of N-Acetyl-D-Mannosamine (ManNAc) in Subjects With Primary Focal Segmental Glomerulosclerosis

Researchers are testing a new drug called ManNAc to treat primary focal segmental glomerulosclerosis (FSGS), a rare kidney disease that causes scarring and can lead to kidney failure. This is a Phase 2 trial, meaning the drug has already been tested for safety in a small group and now researchers want to see if it actually works to help patients. The trial is now accepting patients and is expected to start in April 2026.

WHY IT MATTERSThis trial offers patients with primary FSGS access to an investigational treatment that may slow or stop kidney damage, with enrollment now open at sites participating in the National Human Genome Research Institute study.
→ You can act on thisFocal Segmental Glomerulosclerosis (FSGS)Primary Focal Segmental GlomerulosclerosisRead →

Get personalized rare disease news

Follow your conditions to see news about the diseases that matter to you — FDA approvals, trial openings, and research breakthroughs.

Create free account →Browse diseases