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3 articles from the last 30 days matching "hemophilia A"

ResearchRSSToday

Real-world study backs safety of Hemlibra for acquired hemophilia A

A study in Japan found that Hemlibra, a medicine used to treat acquired hemophilia A (a rare bleeding disorder that develops later in life), appears to be safe when used alongside other medications that suppress the immune system. Acquired hemophilia A is different from the hemophilia people are born with—it happens when the body mistakenly attacks its own clotting proteins. This is the first real-world evidence supporting Hemlibra's safety for this condition in actual patients.

WHY IT MATTERSIf you have acquired hemophilia A in Japan or are considering treatment options, this study suggests Hemlibra may be a safe addition to your treatment plan, though you should discuss this with your hematologist to see if it's right for your specific situation.
💬 Ask your doctoracquired hemophilia A
ResearchRSSMay 12

Advanced joint disease alters how hemophilia patients walk: Study

A new study from Germany found that people with hemophilia who have advanced joint damage walk differently than others, mainly because their ankles don't move as well. To adapt to this limited ankle movement, their bodies develop new walking patterns that may use more energy and be less efficient. Understanding these changes could help doctors better support hemophilia patients in staying active.

WHY IT MATTERSIf you have hemophilia with joint damage, knowing that your altered walking pattern is a direct result of reduced ankle mobility could help you work with your doctor on targeted physical therapy or mobility interventions to improve efficiency and reduce fatigue.
💬 Ask your doctorhemophiliahemophilic arthropathy
ResearchRSSMay 1

Many women with hemophilia-related mutations lack access to medical care

A new study found that many women who carry hemophilia gene mutations are not getting proper medical care, even though they live in countries with good healthcare systems. These women often don't know they carry the mutation and aren't included in official patient lists. The main problem is that they can't easily access genetic testing to find out if they have the mutation.

WHY IT MATTERSWomen with hemophilia mutations may experience bleeding problems and need specialized care, but without diagnosis and medical attention, they won't know to seek treatment or get proper support for their health.
💬 Ask your doctorHemophilia AHemophilia B

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