Rare disease news

FDA approvals, research breakthroughs, clinical trials, and advocacy updates

Curated and summarized by AI for patients and caregivers

🔍
AllDrug approvalsClinical trialsResearchGrants & fundingAdvocacy & policyPipeline
Show:All newsBreaking onlyImportant & breaking
Date:7 days30 days90 daysAll time

2 articles from the last 30 days matching "advanced-disease"

ResearchCLINICALTRIALSToday

Trial Completed: Covid-19 in Patients With Chronic Inflammatory Rheumatism, Auto-immune or Auto-inflammatory Rare and Non-rare Diseases (NCT04353609)

Researchers completed a large study of 13,770 patients with chronic inflammatory diseases (like rheumatoid arthritis and other autoimmune conditions) to understand how COVID-19 affected them. The study, led by a hospital in France, was designed to track whether patients taking medications for their autoimmune diseases had worse outcomes if they caught COVID-19. This trial has now finished collecting data.

WHY IT MATTERSIf you have an autoimmune or inflammatory disease, this completed trial provides real-world evidence about COVID-19 risk in your population—information that can help you and your doctor make informed decisions about infection prevention and disease management.
ℹ Good to knowRheumatoid ArthritisChronic Inflammatory RheumatismAutoimmune Diseases
ResearchRSSApr 27

Support concerns lead women with Parkinson’s to shun DBS: Study

A new study found that women with Parkinson's disease are much less likely than men to choose a brain surgery called deep brain stimulation (DBS). The main reason is that women often worry about being a burden on their family and don't have as much support available to help them through the procedure and recovery.

WHY IT MATTERSIf you're a woman with Parkinson's considering DBS, understanding that support concerns are common may help you have more honest conversations with your doctor and family about what you actually need to move forward with treatment.
💬 Ask your doctorParkinson's disease

Get personalized rare disease news

Follow your conditions to see news about the diseases that matter to you — FDA approvals, trial openings, and research breakthroughs.

Create free account →Browse diseases