Rare disease news

FDA approvals, research breakthroughs, clinical trials, and advocacy updates

Curated and summarized by AI for patients and caregivers

🔍
AllDrug approvalsClinical trialsResearchGrants & fundingAdvocacy & policyPipeline
Show:All newsBreaking onlyImportant & breaking
Date:7 days30 days90 daysAll time

4 articles from the last 90 days matching "Hypoxia"

ResearchRSSMay 15

Cereno, PHA Europe partner on patient-centered PH drug design

A company called Cereno Scientific is working with PHA Europe & Global to design new pulmonary hypertension medicines in a way that includes patient input. Instead of just scientists deciding how to develop drugs, patients with pulmonary hypertension will have a say in the process from start to finish. This partnership means the final medications may work better for the people who actually need them.

WHY IT MATTERSPatients with pulmonary hypertension will now have direct input into how new treatments are designed, potentially resulting in drugs that better address their real-world needs and concerns.
ℹ Good to knowpulmonary hypertension
ResearchRSSApr 29

Corvista, Mayo Clinic team up to study non-invasive PH diagnostic test

Corvista Health and Mayo Clinic are working together to test a new blood test that could help doctors diagnose pulmonary hypertension (a serious lung disease where blood pressure in the lungs gets too high) without invasive procedures. The test aims to make it easier to identify who has the disease, figure out how severe it is, and decide who needs to see a specialist. This collaboration is an important step forward in developing better diagnostic tools for this condition.

WHY IT MATTERSIf successful, this non-invasive test could help patients with suspected pulmonary hypertension get diagnosed faster and more accurately, potentially avoiding unnecessary invasive procedures like heart catheterization while ensuring those who need specialist care are properly referred.
👁 Watch this spacepulmonary hypertension
ResearchRSSApr 24

Study shows PH treatment needs drop as kids with BPD grow

A new study found that babies born early who develop a lung condition called bronchopulmonary dysplasia (BPD) often need medications to treat high blood pressure in their lungs (pulmonary hypertension). However, as these children grow into toddlers around age 2, many of them stop needing these medications. This suggests that the lung condition may improve naturally as kids get older.

WHY IT MATTERSIf your child with BPD and pulmonary hypertension is on PH medications, this research suggests their doctor may be able to reduce or stop treatment as they grow, potentially reducing long-term medication burden and side effects.
💬 Ask your doctorbronchopulmonary dysplasiapulmonary hypertension
ResearchRSSApr 22

Wrist sensors reveal physical activity gaps for children with PH in study

A new study used wrist sensors to track physical activity in children with pulmonary hypertension (a condition where blood pressure in the lungs is too high). Researchers found that kids with this condition exercise less intensely and for shorter periods than healthy children. Children with more severe cases had even bigger drops in exercise intensity.

WHY IT MATTERSUnderstanding how pulmonary hypertension limits children's physical activity can help doctors and families set realistic exercise goals and monitor whether treatments are helping kids stay more active.
💬 Ask your doctorpulmonary hypertension

Get personalized rare disease news

Follow your conditions to see news about the diseases that matter to you — FDA approvals, trial openings, and research breakthroughs.

Create free account →Browse diseases