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1 article from the last 30 days matching "Glycogen Storage Disease Type II"

AdvocacyRSSMay 4

Riding the Absa Cape Epic With Pompe Disease: The Story No One Sees

Bruce Campbell, who has Pompe disease, competed in the Absa Cape Epic, a major mountain biking race. This article shares the hidden challenges he faced during the race that most people don't see. It shows what it's like to push your body to its limits while managing a rare muscle disease.

WHY IT MATTERSThis story demonstrates that people living with Pompe disease can pursue athletic goals and extreme physical challenges, which may inspire patients and help caregivers understand what's possible with proper management.
Good to knowPompe disease

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