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2 articles from the last 7 days matching "world hemophilia day"

AdvocacyRSSYesterday

Research destination, stay prepared when traveling with hemophilia

Thomas Graham shares practical tips for people with hemophilia who want to travel safely. He explains how to prepare for medical emergencies while away from home, how to find doctors and hospitals that can help, and how to speak up for yourself when you need medical care. His advice helps travelers with hemophilia feel more confident and ready.

WHY IT MATTERSPeople with hemophilia face unique challenges when traveling, such as finding emergency care that understands their bleeding disorder and managing their treatment supplies away from home — this article provides real-world strategies from someone living with the condition.
Good to knowhemophiliaRead →
AdvocacyRSS5 days ago

Celebrating hemophilia progress while remembering our community’s past

A person recently attended the Hemophilia Federation of America's annual symposium in New Orleans and shared their positive experience meeting others in the hemophilia community. The event inspired reflection on both current progress in treating hemophilia and the difficult history the community has faced. The author expressed gratitude for being included and highlighted the importance of gathering with others who understand the challenges of living with a bleeding disorder.

WHY IT MATTERSCommunity events like the HFA Symposium provide hemophilia patients and caregivers with opportunities to connect with others, learn about new treatments, and access support networks that can improve quality of life and treatment decisions.
Good to knowhemophiliaRead →

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