Trial Now Recruiting: Genetic of Intellectual Deficiency and Autism Spectrum Disorders (RaDiCo-GenIDA) (NCT06871696)
WHY IT MATTERS
This study directly recruits families affected by genetic intellectual disability and autism spectrum disorder to build a database that could lead to personalized medicine approaches for these conditions.
Researchers in France are looking for 1,000 families with children who have intellectual disabilities or autism caused by genetic changes. Families will answer questions online about their child's health and development to help doctors better understand these conditions and create personalized treatment plans in the future.
NCT ID: NCT06871696 Status: RECRUITING Conditions: Genetic of Intellectual Deficiency, Autism Spectrum Disorder Enrollment: 1000 Sponsor: Institut National de la Santé Et de la Recherche Médicale, France Summary: The aim of this observational study is to develop an alternative database model for genetically originated intellectual disabilities. This model will take the form of an online cohort study, where the majority of clinical information will be provided by the families of the patients. Questionnaires developed by professionals but formulated in a way understandable to families will be used to gather this information. Specifically, this study aims to collect relevant information for personalized me
YOU CAN ACT ON THIS
If your child has been diagnosed with genetic intellectual disability or autism spectrum disorder, you can check if your family meets eligibility criteria and enroll at clinicaltrials.gov using NCT06871696.