How my mother gave everything she had to a child with SMA
WHY IT MATTERS
Personal stories from SMA patients and caregivers help newly diagnosed families understand the emotional and practical realities of living with this condition, which can inform their own care planning and coping strategies.
A patient shares their personal story about being diagnosed with SMA (spinal muscular atrophy) as a premature baby and the emotional toll it took on their young mother. The article explores how their mother sacrificed greatly to care for them while facing blame and judgment from others who didn't understand the condition. This is a first-person account of living with SMA and the family impact of a serious genetic disease.
“You must have dropped the baby.” That sentence was one of the many knives flung at my mother’s chest when I was diagnosed with SMA. She was 24, barely an adult. I was a difficult pregnancy, born a full month before I was due. My birth would’ve been even earlier had she not agreed to […] The post How my mother gave everything she had to a child with SMA appeared first on SMA News Today .