PBC Summit Centers the Voices of People Living With the Disease
WHY IT MATTERS
Patient-centered conferences like this one help people with PBC connect with others, learn directly from their peers' experiences, and ensure their needs shape future research and treatment discussions.
The PBC Foundation International Summit is a conference where people living with primary biliary cholangitis (PBC)—a rare liver disease—share their experiences and perspectives. Unlike typical medical conferences focused mainly on doctors and research, this summit puts patients' voices at the center of discussions. A woman with PBC explains what makes this event different and valuable for the community.
A woman with primary biliary cholangitis (PBC) shares why the PBC Foundation International Summit isn't like other rare disease conferences. The post PBC Summit Centers the Voices of People Living With the Disease appeared first on Rare Disease Advisor