NewsNORDWednesday, May 6, 2026 · May 6, 2026
2026 Rare Disease Scientific Symposium: Event Recap and Recordings
WHY IT MATTERS
NORD advocacy and policy updates affecting the rare disease community.
Advancing Innovation in Rare Disease Research At NORD’s 2nd Annual Rare Disease Scientific Symposium, the central question was not whether rare disease innovation is possible, but how to make it … Continue reading "2026 Rare Disease Scientific Symposium: Event Recap and Recordings"
Related news
NORD · Today
Access to Answers — Bridging the Gap to Genetic Expertise
Congress is currently considering the Access to Genetic Counselor Services Act (H.R. 6280/S. 3607), a bipartisan piece o…
NORD · Yesterday
Recap: NORD Living Rare, Living Stronger in Arizona
Since 2019, the National Organization for Rare Disorders (NORD®) Living Rare, Living Stronger® Patient & Family Foru…
NORD · 3 days ago
Vermont Governor Signs Rare Disease Advisory Council into Law
H.46 makes Vermont the 34th state in the nation – including all states in New England – to give rare disease patients a …
NORD · 4 days ago
Guest Blog: Uniting for Behçet’s Disease Awareness on May 20
By Ashley Pelletier, Executive Director of the American Behcet’s Disease Association (ABDA) On May 20, Behçet’s Disease …