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AdvocacyRSSWednesday, April 22, 2026 · 2 days ago

I won’t apologize for having 3 children with Duchenne MD

WHY IT MATTERS

This personal narrative highlights the lived experience and decision-making process for families with Duchenne muscular dystrophy, offering perspective on genetic counseling, family planning, and the emotional aspects of raising multiple children with the same rare disease.

A mother of seven children shares her story about having three sons with Duchenne muscular dystrophy, a serious genetic muscle disease. She discusses her decision to have children despite knowing the genetic risks and explains why she doesn't regret her family planning choices. The article focuses on her perspective as both a caregiver and parent navigating life with this condition.

I have always been an open book about my life. I am a writer, caregiver, and mother living in the Midwest with my family. My husband and I have seven children: Lexi, 24; Max, 20; Chance, 18; Rowen, 17; Charlie, 15; Mary, 11; and Callie, 4. Max, Rowen, and Charlie all live with Duchenne muscular […] The post I won’t apologize for having 3 children with Duchenne MD appeared first on Muscular Dystrophy News .

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duchenne muscular dystrophyfamily planninggenetic counselingcaregiver perspectivepatient advocacy

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Duchenne muscular dystrophy