Trial Now Recruiting: Pregnancy in Women With Rare Multisystemic Vascular Diseases: COGRare5 Study (NCT04194619)
WHY IT MATTERS
This is the first large study to prospectively track pregnancy outcomes in women with these rare vascular diseases, filling a critical gap in medical knowledge that could directly improve care and safety for pregnant patients with these conditions.
Researchers are looking for pregnant women or women planning to get pregnant who have rare blood vessel diseases like Hereditary Hemorrhagic Telangiectasia, Marfan syndrome, lymphedema, or arteriovenous malformations. This study will track their pregnancies to understand what complications might happen for the mother and baby, since doctors don't have good information about this yet.
NCT ID: NCT04194619 Status: RECRUITING Conditions: Vascular Anomaly, Osler Rendu Disease, Marfan Syndrome or Related, Lymphedema Primary, Arteriovenous Malformations, Cerebrospinal; Disorder Enrollment: 400 Sponsor: Hospices Civils de Lyon Summary: There are no prospective studies of pregnancies for the diseases studied here in (Heredity Hemorrhagic Telangiectasia, Marfan syndrome or related, primary lower limb lymphedema, superficial arteriovenous malformations, and cerebro-spinal arteriovenous malformations) although complications of these can present life-threatening health problems for the mother and her baby. The purpose of this National prospective study is to obtain greater insight into obstetrical complications associated with rar
YOU CAN ACT ON THIS
If you are a woman with one of these vascular diseases and are pregnant or planning pregnancy, contact the study team at Hospices Civils de Lyon (NCT04194619) to learn if you're eligible to enroll.