Trial Now Recruiting: Evaluation of Socio-professional Inclusion for Young Adults Aged 15-25 Living With a Rare Genetic Disability (NCT07527624)

WHY IT MATTERS

This trial directly addresses employment and education barriers that young adults with rare genetic disabilities face — areas where they typically have the fewest resources and support.

Researchers are looking for young adults ages 15-25 with rare genetic disabilities to join a study about getting jobs and education. The study will follow 300 participants and examine the challenges these young people face when trying to go to school, get internships, or find work. Many young people with rare genetic diseases struggle with these opportunities because of their condition and lack of support.

NCT ID: NCT07527624 Status: RECRUITING Conditions: Rare Diseases Enrollment: 300 Sponsor: Imagine Institute Summary: Rare diseases are often synonymous with difficulties for sufferers, whether physical, mental or social. Patients suffering from rare diseases face specific problems, such as the long wait for a diagnosis, the geographical distance between the rare disease reference center and home, and the isolation created by this very disabling disease... Children suffering from rare genetic diseases have difficulty accessing higher education, but above all in finding an internship or work-study placement, due

YOU CAN ACT ON THIS

If you are 15-25 years old with a rare genetic disability, contact the Imagine Institute through clinicaltrials.gov (NCT07527624) to learn if you qualify and how to enroll.