Trial Completed: Rare CNS Tumors Outcomes &Risk (NCT03251989)
WHY IT MATTERS
This completed study provides researchers with genetic and health data from 326 patients that could lead to better understanding of why these rare brain tumors develop, potentially informing future treatment options and risk screening for patients with these conditions.
Researchers at the National Cancer Institute completed a study of 326 people with rare brain and spine tumors, including meningioma, ependymoma, medulloblastoma, and other types. The study collected health information and genetic data to understand what causes these tumors to develop and what factors increase the risk of getting them. These tumors are very uncommon, affecting fewer than 2,000 people per year in the United States.
NCT ID: NCT03251989 Status: COMPLETED Conditions: High Grade Meningioma, Ependymoma, Medulloblastoma, PNET, Primary CNS Sarcoma Enrollment: 326 Sponsor: National Cancer Institute (NCI) Summary: Background: Primary tumors of the brain and spine are those that start in the brain or spine. These tumors are rare, accounting for \<2% of all cancers diagnosed in the United States. Some of these tumors occur in less than 2,000 people per year. Researchers want to study a large group of people with this kind of tumor. They want to learn more about the tumors, including the risk factors related to how they develop in adults. Objective: To collect health and gene data to learn about what chang