Trial Completed: Using Social Robots in Children With Rare Diseases and Their Parents: A Feasibility Study (NCT06466109)

WHY IT MATTERS

This completed trial demonstrates a novel approach to family-centered support for rare disease patients—social robots may offer accessible emotional and relational support when specialized mental health resources for rare disease families are limited.

Researchers completed a small study with 14 children who have rare diseases and their parents to test whether a social robot could help families cope better. The robot was designed to provide support and improve relationships between parents and children while reducing stress and worry. The study looked at whether families found the robot helpful and acceptable to use in their daily lives.

NCT ID: NCT06466109 Status: COMPLETED Conditions: Rare Diseases Phase: NA Enrollment: 14 Sponsor: National Yang Ming Chiao Tung University Summary: The goals of this clinical trial are to (a) evaluate the feasibility and acceptability of a social robot intervention for providing family-based care for rare diseases families and (b) explore the effectiveness of the social robot intervention in improving the parent-child relationships and alleviating stress and anxiety for rare diseases patients and their parents. The main questions are: * Is the social robot intervention suitable for and acceptable to rare disease patients and parents? * Doe