NewsNORDTuesday, March 24, 2026 · March 24, 2026
NORD Advances Policy Leadership with Strategic Appointments to Strengthen Rare Disease Advocacy
WHY IT MATTERS
NORD advocacy and policy updates affecting the rare disease community.
WASHINGTON, D.C. — March 24, 2026 — The National Organization for Rare Disorders (NORD®) today announced the appointments of Michael J. Beard as Vice President of Federal and Global Public … Continue reading "NORD Advances Policy Leadership with Strategic Appointments to Strengthen Rare Diseas
Related news
NORD · Today
Access to Answers — Bridging the Gap to Genetic Expertise
Congress is currently considering the Access to Genetic Counselor Services Act (H.R. 6280/S. 3607), a bipartisan piece o…
NORD · Yesterday
Recap: NORD Living Rare, Living Stronger in Arizona
Since 2019, the National Organization for Rare Disorders (NORD®) Living Rare, Living Stronger® Patient & Family Foru…
NORD · 3 days ago
Vermont Governor Signs Rare Disease Advisory Council into Law
H.46 makes Vermont the 34th state in the nation – including all states in New England – to give rare disease patients a …
NORD · 4 days ago
Guest Blog: Uniting for Behçet’s Disease Awareness on May 20
By Ashley Pelletier, Executive Director of the American Behcet’s Disease Association (ABDA) On May 20, Behçet’s Disease …