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NewsRSSFriday, May 22, 2026 · Today

Despite my sacrifices, I’m still dealing with pain medication side effects

WHY IT MATTERS

People with SMA and other conditions causing chronic pain need to understand that medication side effects are common and worth discussing with their healthcare team, as this firsthand account validates the real-world challenges of pain management beyond what clinical trials typically show.

A person with spinal muscular atrophy (SMA) shares their personal experience managing chronic pain with fentanyl and other pain medications. Even though they've made lifestyle changes to reduce pain, they still experience unwanted side effects from the medications. The article emphasizes that everyone responds differently to pain treatments and encourages people to talk with their doctor before making any changes to their medications.

Note: This column describes the author’s own experiences with fentanyl and other pain medications. Not everyone will have the same response to treatment. Consult your doctor before starting or stopping a therapy. “You really know pain, huh?” someone asked me, eyes wide with concern. In response to their offering me a glass of wine, I […] The post Despite my sacrifices, I’m still dealing with pain medication side effects appeared first on SMA News Today .

ASK YOUR DOCTOR

If you're taking fentanyl or other pain medications and experiencing side effects, use this article as a conversation starter with your doctor about whether your current pain management plan is working for you or if alternatives should be explored.

Find a specialist →Learn more ↗
pain managementmedication side effectspatient perspectivechronic paintreatment experience

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