Trial Now Recruiting: International Rare Brain Tumor Registry (NCT05697874)
WHY IT MATTERS
This registry directly addresses rare brain tumors like astroblastoma and BCOR ITD sarcoma that have limited research data—participating patients contribute to the only large-scale international effort to understand these specific tumor types.
Researchers are building a large international database to collect information and tissue samples from children, teens, and young adults with rare brain tumors. By gathering this data from 5,800 patients, scientists hope to better understand these uncommon cancers and develop better treatments. The study is currently looking for patients to participate.
NCT ID: NCT05697874 Status: RECRUITING Conditions: Astroblastoma, BCOR ITD Sarcoma, CNS Sarcoma, Unclassified Tumor, Malignant Enrollment: 5800 Sponsor: Children's National Research Institute Summary: The objective of the International Rare Brain Tumor Registry (IRBTR) is to better understand rare brain tumors through the collection of biospecimens and matched clinical data of children, adolescents, and young adult patients diagnosed with rare brain tumors.
YOU CAN ACT ON THIS
If your child or young adult has been diagnosed with one of these rare brain tumors, ask your oncologist about enrolling in NCT05697874 to see if your case qualifies.