Growing up with PH meant answering a lot of questions from peers
WHY IT MATTERS
Patients with pulmonary hypertension and their families can find validation and community in peer experiences, while healthcare providers gain insight into the psychosocial impact of PH that extends beyond physical symptoms.
A person with pulmonary hypertension (PH), a rare lung disease that makes it hard for the heart to pump blood through the lungs, shares what it was like growing up with this condition. They had to frequently miss school and explain their illness to classmates who asked questions about their absences. This article highlights the social and emotional challenges that young people with chronic rare diseases face alongside their medical treatment.
Growing up with a rare, chronic illness can draw a lot of attention. Specifically, it can raise a lot of questions, especially from other kids. I can’t remember an age when I wasn’t required to explain my health situation to others, particularly my peers. Early on, absences from school would lead to lunchtime interrogations in […] The post Growing up with PH meant answering a lot of questions from peers appeared first on Pulmonary Hypertension News .