Fund Update: PAN Foundation — Phenylketonuria Fund Phenylketonuria fund is currently closed
WHY IT MATTERS
If you have PKU and were relying on this $12,000 annual assistance to afford your special diet or medications, you'll need to find alternative financial support resources immediately.
The PAN Foundation's financial assistance program for phenylketonuria (PKU) — a rare genetic condition that affects how the body processes a protein called phenylalanine — is currently closed and not accepting new applications. The program previously offered up to $12,000 per year to help patients pay for treatment costs. The fund status changed on April 2, 2026.
Program: PAN Foundation — Phenylketonuria Fund Disease: Phenylketonuria Fund status: closed Max annual benefit: $12,000 Status changed: 2026-04-02T00:00:50.494+00:00 Apply at: https://www.panfoundation.org/disease-funds/phenylketonuria Source: UniteRare financial assistance database
ASK YOUR DOCTOR
Contact your PKU care team or social worker right away to learn about other financial assistance programs, patient advocacy organizations, or state-level support that may help cover your treatment costs while this fund is closed.