NORD Advances Policy Leadership with Strategic Appointments to Strengthen Rare Disease Advocacy
WHY IT MATTERS
Stronger policy leadership at NORD means patients with rare diseases will have more powerful advocates working directly with Congress and government agencies to push for faster drug approvals, better insurance coverage, and increased research funding.
The National Organization for Rare Disorders (NORD), a major patient advocacy group, announced new leadership positions focused on policy and government relations. These appointments aim to strengthen NORD's efforts to influence laws and policies that affect people with rare diseases. The moves show NORD is expanding its work to advocate for patients at the federal and global levels.
Source: NORD News Description: WASHINGTON, D.C. — March 24, 2026 — The National Organization for Rare Disorders (NORD®) today announced the appointments of Michael J. Beard as Vice President of Federal and Global Public … <p class="link-more"><a href="https://rarediseases.org/nord-advances-policy-leadership-with-strategic-appointments-to-strengthen-rare-disease-advocacy/" class="more-link">Continue reading<span class="screen-reader-text"> "NORD Advances Policy Leadership with Strategic Appointments to Strengthen Rare Disease Advocacy"</span></a></p> Published: 2026-03-24