Overview

Clinical phenotype terms— hover any for plain English:

Thickened helicesHP:0000391Long footHP:0001833Thick nasal alaeHP:0009928Broad columellaHP:0010761Tented upper lip vermilionHP:0010804

Orphanet ↗NORD ↗

Treatments

No FDA-approved treatments are currently listed for X-linked intellectual disability, Stevenson type.

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Clinical Trials

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No actively recruiting trials found for X-linked intellectual disability, Stevenson type at this time.

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Search ClinicalTrials.gov ↗Join the X-linked intellectual disability, Stevenson type community →

Specialists

View all specialists →

No specialists are currently listed for X-linked intellectual disability, Stevenson type.

View NORD Rare Disease Centers ↗Undiagnosed Disease Network ↗

Treatment Centers

8 centers

🏥 NORD

Baylor College of Medicine Rare Disease Center ↗

Baylor College of Medicine

📍 Houston, TX

🏥 NORD

Stanford Medicine Rare Disease Center ↗

Stanford Medicine

📍 Stanford, CA

🔬 UDN

NIH Clinical Center Undiagnosed Diseases Program ↗

National Institutes of Health

📍 Bethesda, MD

🔬 UDN

UCLA UDN Clinical Site ↗

UCLA Health

📍 Los Angeles, CA

🔬 UDN

Baylor College of Medicine UDN Clinical Site ↗

Baylor College of Medicine

📍 Houston, TX

🔬 UDN

Harvard/MGH UDN Clinical Site ↗

Massachusetts General Hospital

📍 Boston, MA

🏥 NORD

Mayo Clinic Center for Individualized Medicine ↗

Mayo Clinic

📍 Rochester, MN

👤 Mayo Clinic Center for Individualized Medicine

🏥 NORD

UCLA Rare Disease Day Program ↗

UCLA Health

📍 Los Angeles, CA

Travel Grants

No travel grants are currently matched to X-linked intellectual disability, Stevenson type.

Search all travel grants →NORD Financial Assistance ↗

Community

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Latest news about X-linked intellectual disability, Stevenson type

No recent news articles for X-linked intellectual disability, Stevenson type.

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Caregiver Resources

NORD Caregiver Resources

Support, advocacy, and financial assistance for caregivers of rare disease patients.

Mental Health Support

Rare disease caregiving can be isolating. Connect with counseling and peer support.

Family & Caregiver Grants

Financial assistance programs specifically for caregivers of rare disease patients.

Social Security Disability

Learn how rare disease patients may qualify for SSDI/SSI benefits.