Woolly hair nevus

Last reviewed

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ORPHA:79414OMIM:162900D23.4
Who is this for?
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15Specialists8Treatment centers

Where are you in your journey?

UniteRare data is sourced from FDA.gov, ClinicalTrials.gov, Orphanet, OMIM, and NORD.
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Overview

Also known as:

Clinical phenotype terms— hover any for plain English:

Curly hairHP:0002212Patchy hypopigmentation of hairHP:0011365Woolly scalp hairHP:0040149Congenital posterior occipital alopeciaHP:0007534Verrucous epidermal nevusHP:0034275Widely-spaced incisorsHP:0006304Persistent pupillary membraneHP:0009917Enlarged vestibular aqueductHP:0011387
Orphanet ↗OMIM ↗NORD ↗

Treatments

No FDA-approved treatments are currently listed for Woolly hair nevus.

View clinical trials →

No actively recruiting trials found for Woolly hair nevus at this time.

New trials open frequently. Follow this disease to get notified.

Search ClinicalTrials.gov ↗Join the Woolly hair nevus community →

Specialists

15 foundView all specialists →
JL
Jianying Liang
FREMONT, CA
Specialist
1 Woolly hair nevus publication
YG
Yifeng Guo
Specialist
1 Woolly hair nevus publication
ZL
Zhiyong Lu
Specialist
1 Woolly hair nevus publication
HY
Hong Yu
Specialist
1 Woolly hair nevus publication
ZY
Zhirong Yao
Specialist
1 Woolly hair nevus publication
KV
Kopal Vadera
Specialist
1 Woolly hair nevus publication
MP
Meghana Phiske
Specialist
1 Woolly hair nevus publication
SS
Shylaja Someshwar
Specialist
1 Woolly hair nevus publication
AM
Alvaro March-Rodriguez
Specialist
1 Woolly hair nevus publication
HE
Helena Escolà
Specialist
1 Woolly hair nevus publication
AL
Alejandro Lobato-Berezo
Specialist
1 Woolly hair nevus publication
LC
Laia Curto-Barredo
Specialist
1 Woolly hair nevus publication
RP
Ramon M Pujol
Specialist
1 Woolly hair nevus publication
LW
Liangcai Wu
Specialist
1 Woolly hair nevus publication
AS
Akaljot Singh
STANFORD, CA
Specialist
1 Woolly hair nevus publication

Treatment Centers

8 centers
🏥 NORD

Baylor College of Medicine Rare Disease Center

Baylor College of Medicine

📍 Houston, TX

🏥 NORD

Stanford Medicine Rare Disease Center

Stanford Medicine

📍 Stanford, CA

🔬 UDN

NIH Clinical Center Undiagnosed Diseases Program

National Institutes of Health

📍 Bethesda, MD

🔬 UDN

UCLA UDN Clinical Site

UCLA Health

📍 Los Angeles, CA

🔬 UDN

Baylor College of Medicine UDN Clinical Site

Baylor College of Medicine

📍 Houston, TX

🔬 UDN

Harvard/MGH UDN Clinical Site

Massachusetts General Hospital

📍 Boston, MA

🏥 NORD

Mayo Clinic Center for Individualized Medicine

Mayo Clinic

📍 Rochester, MN

👤 Mayo Clinic Center for Individualized Medicine

🏥 NORD

UCLA Rare Disease Day Program

UCLA Health

📍 Los Angeles, CA

Travel Grants

No travel grants are currently matched to Woolly hair nevus.

Search all travel grants →NORD Financial Assistance ↗

Community

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Latest news about Woolly hair nevus

No recent news articles for Woolly hair nevus.

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Caregiver Resources

NORD Caregiver Resources

Support, advocacy, and financial assistance for caregivers of rare disease patients.

Mental Health Support

Rare disease caregiving can be isolating. Connect with counseling and peer support.

Family & Caregiver Grants

Financial assistance programs specifically for caregivers of rare disease patients.

Social Security Disability

Learn how rare disease patients may qualify for SSDI/SSI benefits.

Common questions about Woolly hair nevus

Which specialists treat Woolly hair nevus?

15 specialists and care centers treating Woolly hair nevus are listed on UniteRare, sourced from ClinicalTrials.gov principal investigators, published research, and the NPPES NPI registry.