Valvular pulmonary stenosis

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ORPHA:99054Q22.1
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1Specialists8Treatment centers

Where are you in your journey?

UniteRare data is sourced from FDA.gov, ClinicalTrials.gov, Orphanet, OMIM, and NORD.
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Overview

Orphanet ↗NORD ↗

FDA & Trial Timeline

1 event
Jun 2025Cohort Observing Mechanisms, Progression and Sequelae of Valvular Heart Disease

Second Affiliated Hospital, School of Medicine, Zhejiang University

TrialRECRUITING

Data sourced from FDA regulatory filings and ClinicalTrials.gov. Updated periodically.

Treatments

No FDA-approved treatments are currently listed for Valvular pulmonary stenosis.

View clinical trials →

No actively recruiting trials found for Valvular pulmonary stenosis at this time.

New trials open frequently. Follow this disease to get notified.

Search ClinicalTrials.gov ↗Join the Valvular pulmonary stenosis community →

Specialists

1 foundView all specialists →
AM
Azeem Latib, MD
Specialist
PI on 2 active trials1 Valvular pulmonary stenosis publication

Treatment Centers

8 centers
🏥 NORD

Baylor College of Medicine Rare Disease Center

Baylor College of Medicine

📍 Houston, TX

🏥 NORD

Stanford Medicine Rare Disease Center

Stanford Medicine

📍 Stanford, CA

🔬 UDN

NIH Clinical Center Undiagnosed Diseases Program

National Institutes of Health

📍 Bethesda, MD

🔬 UDN

UCLA UDN Clinical Site

UCLA Health

📍 Los Angeles, CA

🔬 UDN

Baylor College of Medicine UDN Clinical Site

Baylor College of Medicine

📍 Houston, TX

🔬 UDN

Harvard/MGH UDN Clinical Site

Massachusetts General Hospital

📍 Boston, MA

🏥 NORD

Mayo Clinic Center for Individualized Medicine

Mayo Clinic

📍 Rochester, MN

👤 Mayo Clinic Center for Individualized Medicine

🏥 NORD

UCLA Rare Disease Day Program

UCLA Health

📍 Los Angeles, CA

Travel Grants

No travel grants are currently matched to Valvular pulmonary stenosis.

Search all travel grants →NORD Financial Assistance ↗

Community

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Latest news about Valvular pulmonary stenosis

Disease timeline:

New recruiting trial: Cohort Observing Mechanisms, Progression and Sequelae of Valvular Heart Disease

A new clinical trial is recruiting patients for Valvular pulmonary stenosis

Caregiver Resources

NORD Caregiver Resources

Support, advocacy, and financial assistance for caregivers of rare disease patients.

Mental Health Support

Rare disease caregiving can be isolating. Connect with counseling and peer support.

Family & Caregiver Grants

Financial assistance programs specifically for caregivers of rare disease patients.

Social Security Disability

Learn how rare disease patients may qualify for SSDI/SSI benefits.

Common questions about Valvular pulmonary stenosis

Which specialists treat Valvular pulmonary stenosis?

1 specialists and care centers treating Valvular pulmonary stenosis are listed on UniteRare, sourced from ClinicalTrials.gov principal investigators, published research, and the NPPES NPI registry.