Univentricular cardiopathy

Last reviewed

🖨 Print for my doctorAdvocacy Hub →
ORPHA:95483
Who is this for?
Show terms as
28Specialists8Treatment centers

Where are you in your journey?

UniteRare data is sourced from FDA.gov, ClinicalTrials.gov, Orphanet, OMIM, and NORD.
Report missing data

Overview

Orphanet ↗NORD ↗

FDA & Trial Timeline

10 events
Jan 2026Venous Compression in Fontan

University of Texas Southwestern Medical Center — NA

TrialNOT YET RECRUITING
Aug 2025Transcatheter Fontan Stenting: Impact on Hepatic Stiffness and Exercise Capacity

Children's Hospital Los Angeles

TrialRECRUITING
Jul 2025Impact of Early Fortini Initiation on Growth and Interstage Outcomes in Infants With Single Ventricle Physiology

Driscoll Children's Hospital — NA

TrialNOT YET RECRUITING
Jun 2025Fontan Fitness Trial

Children's Hospital of Philadelphia — NA

TrialRECRUITING
Oct 2024Extracellular Vesicle Micro RNA Profiling in Congenital Heart Disease: Fetal-Maternal Regulation in Neonatal Thrombosis

Boston Children's Hospital

TrialRECRUITING
Oct 2024PK/PD of Digoxin in Infants With SVHD

Duke University — PHASE1, PHASE2

TrialRECRUITING
Jul 2024Association of Near Infrared Spectroscopy With Interstage Outcomes

Advocate Hospital System — NA

TrialRECRUITING
May 2024REHAB Fontan Failure: A Trial of Cardiac Rehabilitation

Stanford University — NA

TrialRECRUITING
Jul 2022Ventripoint Single Ventricle Study

Duke University — NA

TrialRECRUITING
Jun 2021Registry to Assess the Safety and Feasibility of the Subpulmonary Support with the Novel Venous Cannula in Patients with Failing/Absence of the Right Heart

Berlin Heart GmbH

TrialRECRUITING

Data sourced from FDA regulatory filings and ClinicalTrials.gov. Updated periodically.

Treatments

No FDA-approved treatments are currently listed for Univentricular cardiopathy.

View clinical trials →

No actively recruiting trials found for Univentricular cardiopathy at this time.

New trials open frequently. Follow this disease to get notified.

Search ClinicalTrials.gov ↗Join the Univentricular cardiopathy community →

Specialists

Showing 25 of 28View all specialists →
FM
Frank Cetta, MD
CHICAGO, IL
Specialist
PI on 1 active trial
MM
Mark A Fogel, MD
LONG BEACH, NY
Specialist
PI on 1 active trial
JM
James Tweddell, M.D.
Specialist
PI on 2 active trials
RP
Ram Kumar Subramanyan, M.D., Ph.D.
LOS ANGELES, CA
Specialist
PI on 2 active trials
JM
James Jaggers, M.D.
LONGVIEW, TX
Specialist
PI on 2 active trials
DM
David M. Overman, M.D.
MINNEAPOLIS, MN
Specialist
PI on 1 active trial
WM
Waldemar Carlo, M.D.
BIRMINGHAM, AL
Specialist
PI on 1 active trial
JM
Joseph W. Rossano, M.D.
PHILADELPHIA, PA
Specialist
PI on 1 active trial
HM
Harold M. Burkhart, M.D.
OKLAHOMA CITY, OK
Specialist
PI on 1 active trial
BM
Benjamin Peeler, M.D.
NEW ORLEANS, LA
Specialist
PI on 1 active trial
MM
Mark Fogel, MD
Philadelphia, Pennsylvania
Specialist

Rare Disease Specialist

PI on 3 active trials
WM
William Mahle, MD
MARIETTA, GA
Specialist
PI on 5 active trials1 Univentricular cardiopathy publication
TP
Timothy J Nelson, M.D., Ph.D.
Specialist
PI on 3 active trials
PM
Pascal AMEDRO, MD-PhD
WASHINGTON, DC
Specialist
PI on 3 active trials
RM
Robert M Campbell, MD
Specialist
PI on 1 active trial
SP
Sven Dittrich, Prof.
Erlangen
Specialist

Rare Disease Specialist

PI on 2 active trials
TP
Thomas Moller, MD PhD
Specialist
PI on 1 active trial
EM
Elizabeth Goldmuntz, MD
PHILADELPHIA, PA
Specialist
PI on 1 active trial
PM
Piers Barker, MD
DURHAM, NC
Specialist
PI on 1 active trial
FM
Fred Wu, MD
Specialist
PI on 2 active trials
SM
Shaji C. Menon, MD
WORMLEYSBURG, PA
Specialist
PI on 1 active trial
RM
Rahul Rathod, MD
BOSTON, MA
Specialist
PI on 2 active trials
JM
Jennifer Conway, MD
Specialist
PI on 1 active trial
JM
Johan MOREAU
Specialist
PI on 1 active trial19 Univentricular cardiopathy publications

Treatment Centers

8 centers
🏥 NORD

Baylor College of Medicine Rare Disease Center

Baylor College of Medicine

📍 Houston, TX

🏥 NORD

Stanford Medicine Rare Disease Center

Stanford Medicine

📍 Stanford, CA

🔬 UDN

NIH Clinical Center Undiagnosed Diseases Program

National Institutes of Health

📍 Bethesda, MD

🔬 UDN

UCLA UDN Clinical Site

UCLA Health

📍 Los Angeles, CA

🔬 UDN

Baylor College of Medicine UDN Clinical Site

Baylor College of Medicine

📍 Houston, TX

🔬 UDN

Harvard/MGH UDN Clinical Site

Massachusetts General Hospital

📍 Boston, MA

🏥 NORD

Mayo Clinic Center for Individualized Medicine

Mayo Clinic

📍 Rochester, MN

👤 Mayo Clinic Center for Individualized Medicine

🏥 NORD

UCLA Rare Disease Day Program

UCLA Health

📍 Los Angeles, CA

Travel Grants

No travel grants are currently matched to Univentricular cardiopathy.

Search all travel grants →NORD Financial Assistance ↗

Community

Open Univentricular cardiopathyForum →

No community posts yet. Be the first to share your experience with Univentricular cardiopathy.

Start the conversation →

Latest news about Univentricular cardiopathy

Disease timeline:

New recruiting trial: PK/PD of Digoxin in Infants With SVHD

A new clinical trial is recruiting patients for Univentricular cardiopathy

New recruiting trial: Interstage Monitoring Using an Implantable Loop Recorder: A Pilot Study

A new clinical trial is recruiting patients for Univentricular cardiopathy

New recruiting trial: Association of Near Infrared Spectroscopy With Interstage Outcomes

A new clinical trial is recruiting patients for Univentricular cardiopathy

New recruiting trial: Prospective Evaluation of Univentricular Hearts

A new clinical trial is recruiting patients for Univentricular cardiopathy

New recruiting trial: Ventripoint Single Ventricle Study

A new clinical trial is recruiting patients for Univentricular cardiopathy

New recruiting trial: ET1 Concentration, Metabolic Pathway Activation, and Pulmonary Blood Flow in Infants Undergoing Superior Cavo-Pulmonary Anastomosis

A new clinical trial is recruiting patients for Univentricular cardiopathy

New recruiting trial: Autologous Induced Pluripotent Stem Cells of Cardiac Lineage for Congenital Heart Disease

A new clinical trial is recruiting patients for Univentricular cardiopathy

New recruiting trial: Transcatheter Fontan Stenting: Impact on Hepatic Stiffness and Exercise Capacity

A new clinical trial is recruiting patients for Univentricular cardiopathy

New recruiting trial: Fontan Fitness Trial

A new clinical trial is recruiting patients for Univentricular cardiopathy

New recruiting trial: Fibrosis and the Fontan

A new clinical trial is recruiting patients for Univentricular cardiopathy

Caregiver Resources

NORD Caregiver Resources

Support, advocacy, and financial assistance for caregivers of rare disease patients.

Mental Health Support

Rare disease caregiving can be isolating. Connect with counseling and peer support.

Family & Caregiver Grants

Financial assistance programs specifically for caregivers of rare disease patients.

Social Security Disability

Learn how rare disease patients may qualify for SSDI/SSI benefits.

Common questions about Univentricular cardiopathy

Which specialists treat Univentricular cardiopathy?

25 specialists and care centers treating Univentricular cardiopathy are listed on UniteRare, sourced from ClinicalTrials.gov principal investigators, published research, and the NPPES NPI registry.