UMOD-related autosomal dominant tubulointerstitial kidney disease

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ORPHA:88950OMIM:162000Q61.5
Who is this for?
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1Specialists8Treatment centers1Financial resources

Where are you in your journey?

UniteRare data is sourced from FDA.gov, ClinicalTrials.gov, Orphanet, OMIM, and NORD.
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Overview

Also known as:

Orphanet ↗OMIM ↗NORD ↗

FDA & Trial Timeline

2 events
Mar 2026Is There Any Prognostic Value of Serum Uromodulin in Sepsis Induced AKI.

Assiut University

TrialNOT YET RECRUITING
Jun 2023Prevalence, Incidence and Risk Signature of Chronic Kidney Disease in Sub-Saharan Africa

Swiss Tropical & Public Health Institute — NA

TrialRECRUITING

Data sourced from FDA regulatory filings and ClinicalTrials.gov. Updated periodically.

Treatments

No FDA-approved treatments are currently listed for UMOD-related autosomal dominant tubulointerstitial kidney disease.

View clinical trials →

No actively recruiting trials found for UMOD-related autosomal dominant tubulointerstitial kidney disease at this time.

New trials open frequently. Follow this disease to get notified.

Search ClinicalTrials.gov ↗Join the UMOD-related autosomal dominant tubulointerstitial kidney disease community →

Specialists

1 foundView all specialists →
MM
Michael Mayr, MD
Bagamoyo, Coast Region
Specialist

Rare Disease Specialist

PI on 2 active trials

Treatment Centers

8 centers
🏥 NORD

Baylor College of Medicine Rare Disease Center

Baylor College of Medicine

📍 Houston, TX

🏥 NORD

Stanford Medicine Rare Disease Center

Stanford Medicine

📍 Stanford, CA

🔬 UDN

NIH Clinical Center Undiagnosed Diseases Program

National Institutes of Health

📍 Bethesda, MD

🔬 UDN

UCLA UDN Clinical Site

UCLA Health

📍 Los Angeles, CA

🔬 UDN

Baylor College of Medicine UDN Clinical Site

Baylor College of Medicine

📍 Houston, TX

🔬 UDN

Harvard/MGH UDN Clinical Site

Massachusetts General Hospital

📍 Boston, MA

🏥 NORD

Mayo Clinic Center for Individualized Medicine

Mayo Clinic

📍 Rochester, MN

👤 Mayo Clinic Center for Individualized Medicine

🏥 NORD

UCLA Rare Disease Day Program

UCLA Health

📍 Los Angeles, CA

Financial Resources

1 resources

EPOGEN

Amgen

Anemia in Chronic Kidney Disease

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copay card
Copay CardPatient Assistance
Accepting applications

Travel Grants

No travel grants are currently matched to UMOD-related autosomal dominant tubulointerstitial kidney disease.

Search all travel grants →NORD Financial Assistance ↗

Community

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Latest news about UMOD-related autosomal dominant tubulointerstitial kidney disease

Disease timeline:

New trial: Prevalence, Incidence and Risk Signature of Chronic Kidney Disease in Sub-Saharan Africa

Phase NA trial recruiting.

Caregiver Resources

NORD Caregiver Resources

Support, advocacy, and financial assistance for caregivers of rare disease patients.

Mental Health Support

Rare disease caregiving can be isolating. Connect with counseling and peer support.

Family & Caregiver Grants

Financial assistance programs specifically for caregivers of rare disease patients.

Social Security Disability

Learn how rare disease patients may qualify for SSDI/SSI benefits.

Common questions about UMOD-related autosomal dominant tubulointerstitial kidney disease

Which specialists treat UMOD-related autosomal dominant tubulointerstitial kidney disease?

1 specialists and care centers treating UMOD-related autosomal dominant tubulointerstitial kidney disease are listed on UniteRare, sourced from ClinicalTrials.gov principal investigators, published research, and the NPPES NPI registry.

What treatment and support options exist for UMOD-related autosomal dominant tubulointerstitial kidney disease?

1 patient support program are currently tracked on UniteRare for UMOD-related autosomal dominant tubulointerstitial kidney disease. See the treatments and support programs sections for copay assistance, eligibility, and contact details.