Overview
Also known as:
FDA & Trial Timeline
4 eventsJimmy Espinoza — NA
Peking University Third Hospital
Seattle Children's Hospital
Data sourced from FDA regulatory filings and ClinicalTrials.gov. Updated periodically.
Treatments
No FDA-approved treatments are currently listed for Twin to twin transfusion syndrome.
2 clinical trialsare actively recruiting — trials can provide access to cutting-edge therapies.
View clinical trials →Treatment Centers
8 centersBaylor College of Medicine Rare Disease Center ↗
Baylor College of Medicine
📍 Houston, TX
🏥 NORDStanford Medicine Rare Disease Center ↗
Stanford Medicine
📍 Stanford, CA
🔬 UDNNIH Clinical Center Undiagnosed Diseases Program ↗
National Institutes of Health
📍 Bethesda, MD
🔬 UDNUCLA UDN Clinical Site ↗
UCLA Health
📍 Los Angeles, CA
🔬 UDNBaylor College of Medicine UDN Clinical Site ↗
Baylor College of Medicine
📍 Houston, TX
🔬 UDNHarvard/MGH UDN Clinical Site ↗
Massachusetts General Hospital
📍 Boston, MA
🏥 NORDMayo Clinic Center for Individualized Medicine ↗
Mayo Clinic
📍 Rochester, MN
👤 Mayo Clinic Center for Individualized Medicine
🏥 NORDUCLA Rare Disease Day Program ↗
UCLA Health
📍 Los Angeles, CA
Travel Grants
No travel grants are currently matched to Twin to twin transfusion syndrome.
Community
No community posts yet. Be the first to share your experience with Twin to twin transfusion syndrome.
Start the conversation →Latest news about Twin to twin transfusion syndrome
Disease timeline:
New recruiting trial: Laser Photocoagulation of Communicating Vessels in Twin-to-Twin Transfusion Syndrome
A new clinical trial is recruiting patients for Twin to twin transfusion syndrome
New recruiting trial: Multicenter Prospective Cohort Study of Twin Maternal-Child Dyads in China
A new clinical trial is recruiting patients for Twin to twin transfusion syndrome
Caregiver Resources
NORD Caregiver Resources
Support, advocacy, and financial assistance for caregivers of rare disease patients.
Mental Health Support
Rare disease caregiving can be isolating. Connect with counseling and peer support.
Family & Caregiver Grants
Financial assistance programs specifically for caregivers of rare disease patients.
Social Security Disability
Learn how rare disease patients may qualify for SSDI/SSI benefits.
Common questions about Twin to twin transfusion syndrome
Are there clinical trials for Twin to twin transfusion syndrome?
Yes — 2 recruiting clinical trials are currently listed for Twin to twin transfusion syndrome on UniteRare. See the clinical trials section on this page for phase, sponsor, and site details sourced from ClinicalTrials.gov.
Which specialists treat Twin to twin transfusion syndrome?
12 specialists and care centers treating Twin to twin transfusion syndrome are listed on UniteRare, sourced from ClinicalTrials.gov principal investigators, published research, and the NPPES NPI registry.