Overview
Also known as:
Clinical phenotype terms— hover any for plain English:
FDA & Trial Timeline
9 eventsISPA - Instituto Universitario de Ciencias Psicologicas, Sociais e da Vida — NA
Universidad San Sebastián — NA
Sun Jing — PHASE2
Johannes Schiefelbein — NA
Scripps Translational Science Institute — NA
Brigham and Women's Hospital — PHASE4
University of Calgary
Somatuline Depot: FDA approved
Long-term treatment of acromegalic patients who have had an inadequate response to or cannot be treated with surgery and/or radiotherapy
Data sourced from FDA regulatory filings and ClinicalTrials.gov. Updated periodically.
Treatments
1 availableSomatuline Depot
Long-term treatment of acromegalic patients who have had an inadequate response to or cannot be treated with surgery and/or radiotherapy
Clinical Trials
View all trials with filters →No actively recruiting trials found for Trichohepatoenteric syndrome at this time.
New trials open frequently. Follow this disease to get notified.
Specialists
View all specialists →No specialists are currently listed for Trichohepatoenteric syndrome.
Treatment Centers
8 centersBaylor College of Medicine Rare Disease Center ↗
Baylor College of Medicine
📍 Houston, TX
🏥 NORDStanford Medicine Rare Disease Center ↗
Stanford Medicine
📍 Stanford, CA
🔬 UDNNIH Clinical Center Undiagnosed Diseases Program ↗
National Institutes of Health
📍 Bethesda, MD
🔬 UDNUCLA UDN Clinical Site ↗
UCLA Health
📍 Los Angeles, CA
🔬 UDNBaylor College of Medicine UDN Clinical Site ↗
Baylor College of Medicine
📍 Houston, TX
🔬 UDNHarvard/MGH UDN Clinical Site ↗
Massachusetts General Hospital
📍 Boston, MA
🏥 NORDMayo Clinic Center for Individualized Medicine ↗
Mayo Clinic
📍 Rochester, MN
👤 Mayo Clinic Center for Individualized Medicine
🏥 NORDUCLA Rare Disease Day Program ↗
UCLA Health
📍 Los Angeles, CA
Travel Grants
No travel grants are currently matched to Trichohepatoenteric syndrome.
Community
No community posts yet. Be the first to share your experience with Trichohepatoenteric syndrome.
Start the conversation →Latest news about Trichohepatoenteric syndrome
Disease timeline:
New recruiting trial: The Sequencing for Detection in Congenital Heart Disease (SD-CHD) Study
A new clinical trial is recruiting patients for Trichohepatoenteric syndrome
New recruiting trial: Nocardia Rubra Cell Wall Skeleton in Combination With Prior Second- or Third-line Regimens for the Treatment of Potentially Hazardous Colorectal Cancer SD Status
A new clinical trial is recruiting patients for Trichohepatoenteric syndrome
New recruiting trial: Promoting Socioemotional Development in Early Childhood: Implementation and Evaluation of the VIPP-SD Parenting Intervention in Portugal
A new clinical trial is recruiting patients for Trichohepatoenteric syndrome
Caregiver Resources
NORD Caregiver Resources
Support, advocacy, and financial assistance for caregivers of rare disease patients.
Mental Health Support
Rare disease caregiving can be isolating. Connect with counseling and peer support.
Family & Caregiver Grants
Financial assistance programs specifically for caregivers of rare disease patients.
Social Security Disability
Learn how rare disease patients may qualify for SSDI/SSI benefits.