Terrien marginal degeneration

Last reviewed

🖨 Print for my doctorAdvocacy Hub →
ORPHA:519410H18.4
Who is this for?
Show terms as
21Specialists8Treatment centers

Where are you in your journey?

UniteRare data is sourced from FDA.gov, ClinicalTrials.gov, Orphanet, OMIM, and NORD.
Report missing data

Overview

Orphanet ↗NORD ↗

Treatments

No FDA-approved treatments are currently listed for Terrien marginal degeneration.

View clinical trials →

No actively recruiting trials found for Terrien marginal degeneration at this time.

New trials open frequently. Follow this disease to get notified.

Search ClinicalTrials.gov ↗Join the Terrien marginal degeneration community →

Specialists

21 foundView all specialists →
JH
Jesper Hjortdal
Specialist
2 Terrien marginal degeneration publications
AI
Annamari T Immonen
Specialist
2 Terrien marginal degeneration publications
JT
Joni A Turunen
Specialist
2 Terrien marginal degeneration publications
PF
Per Fagerholm
Specialist
2 Terrien marginal degeneration publications
NL
Neil Lagali
Specialist
2 Terrien marginal degeneration publications
TB
Thue Bram
Specialist
2 Terrien marginal degeneration publications
MR
Minna Ruutila
Specialist
3 Terrien marginal degeneration publications
JM
Jukka Moilanen
Specialist
3 Terrien marginal degeneration publications
KK
Kari Krootila
Specialist
3 Terrien marginal degeneration publications
TK
Tero T Kivelä
Specialist
3 Terrien marginal degeneration publications
ML
Marja-Liisa Lokki
Specialist
1 Terrien marginal degeneration publication
AL
A Inkeri Lokki
Specialist
1 Terrien marginal degeneration publication
YH
Yu-Lin Huang
Specialist
1 Terrien marginal degeneration publication
SY
Shu-I Yeh
Specialist
1 Terrien marginal degeneration publication
PR
Pauliina Repo
Specialist
1 Terrien marginal degeneration publication
TM
Tyrone McCall, MD
DALLAS, TX
Specialist
PI on 1 active trial
JO
John D Gelles, OD
Specialist
PI on 1 active trial
DM
Daniel Brocks, MD
NEEDHAM, MA
Specialist
PI on 1 active trial
AF
Alexander Levit, FCOptom
Specialist
PI on 1 active trial
MP
Martin Benwell, PhD
Specialist
PI on 1 active trial
SP
Seok Hyun Yun, PhD
Specialist
PI on 1 active trial

Treatment Centers

8 centers
🏥 NORD

Baylor College of Medicine Rare Disease Center

Baylor College of Medicine

📍 Houston, TX

🏥 NORD

Stanford Medicine Rare Disease Center

Stanford Medicine

📍 Stanford, CA

🔬 UDN

NIH Clinical Center Undiagnosed Diseases Program

National Institutes of Health

📍 Bethesda, MD

🔬 UDN

UCLA UDN Clinical Site

UCLA Health

📍 Los Angeles, CA

🔬 UDN

Baylor College of Medicine UDN Clinical Site

Baylor College of Medicine

📍 Houston, TX

🔬 UDN

Harvard/MGH UDN Clinical Site

Massachusetts General Hospital

📍 Boston, MA

🏥 NORD

Mayo Clinic Center for Individualized Medicine

Mayo Clinic

📍 Rochester, MN

👤 Mayo Clinic Center for Individualized Medicine

🏥 NORD

UCLA Rare Disease Day Program

UCLA Health

📍 Los Angeles, CA

Travel Grants

No travel grants are currently matched to Terrien marginal degeneration.

Search all travel grants →NORD Financial Assistance ↗

Community

Open Terrien marginal degenerationForum →

No community posts yet. Be the first to share your experience with Terrien marginal degeneration.

Start the conversation →

Latest news about Terrien marginal degeneration

No recent news articles for Terrien marginal degeneration.

Follow this condition to be notified when news becomes available.

Caregiver Resources

NORD Caregiver Resources

Support, advocacy, and financial assistance for caregivers of rare disease patients.

Mental Health Support

Rare disease caregiving can be isolating. Connect with counseling and peer support.

Family & Caregiver Grants

Financial assistance programs specifically for caregivers of rare disease patients.

Social Security Disability

Learn how rare disease patients may qualify for SSDI/SSI benefits.

Common questions about Terrien marginal degeneration

Which specialists treat Terrien marginal degeneration?

21 specialists and care centers treating Terrien marginal degeneration are listed on UniteRare, sourced from ClinicalTrials.gov principal investigators, published research, and the NPPES NPI registry.