SUNCT syndrome

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Overview

SUNCT syndrome stands for Short-lasting Unilateral Neuralgiform headache attacks with Conjunctival injection and Tearing. It is a rare type of headache disorder that belongs to a group called trigeminal autonomic cephalalgias (TACs). In SUNCT, people experience very brief but extremely painful headaches, usually felt on one side of the head, often around or behind the eye. These attacks are typically short — lasting anywhere from a few seconds to a few minutes — but they can happen many times a day, sometimes dozens or even hundreds of times. Along with the pain, people often notice redness in the eye (conjunctival injection) and tearing on the same side as the headache. Other symptoms like a runny nose, drooping eyelid, or a feeling of fullness in the ear may also occur. SUNCT is considered a primary headache disorder, meaning it is not caused by another underlying disease in most cases, though secondary causes such as pituitary tumors or brainstem lesions have been found in some patients. The exact cause is not fully understood, but the trigeminal nerve — a major nerve in the face — and certain brain pathways are believed to play a central role. The condition can be very disabling because the attacks are so frequent and intense, even though each one is brief. Treatment is challenging. There is no single FDA-approved medication specifically for SUNCT, but doctors often try medications like lamotrigine, topiramate, or gabapentin to reduce attack frequency. Intravenous lidocaine may be used in severe cases. Some patients respond to surgical approaches such as occipital nerve stimulation or deep brain stimulation when medications do not work well enough.

Also known as:

Key symptoms:

Very brief but severe stabbing or burning pain on one side of the head, usually around the eye or templeRed or bloodshot eye on the same side as the painTearing or watery eye during attacksRunny or stuffy nose on the affected sideDrooping or swollen eyelidAttacks that happen many times per day, sometimes over 100 timesEach attack lasting from a few seconds up to a few minutesSensitivity to light or sound during attacksFeeling of fullness or pressure in the earAttacks that can be triggered by touching the face, eating, or talking

Clinical phenotype terms (23)— hover any for plain English
Conjunctival hyperemiaHP:0030953Episodic painHP:0032148RestlessnessHP:0000711Episodic hyperhidrosisHP:0001069FlushingHP:0031284RhinorrheaHP:0031417Increased tear productionHP:0031731Trigeminal neuralgiaHP:0100661MiosisHP:0000616Facial erythemaHP:0001041Nasal congestionHP:0001742Ear painHP:0030766
Inheritance

Sporadic

Usually appears on its own, not inherited from a parent

Age of Onset

Adult

Begins in adulthood (age 18 or older)

Orphanet ↗NORD ↗

Treatments

No FDA-approved treatments are currently listed for SUNCT syndrome.

View clinical trials →

No actively recruiting trials found for SUNCT syndrome at this time.

New trials open frequently. Follow this disease to get notified.

Search ClinicalTrials.gov ↗Join the SUNCT syndrome community →

No specialists are currently listed for SUNCT syndrome.

View NORD Rare Disease Centers ↗Undiagnosed Disease Network ↗

Treatment Centers

8 centers
🏥 NORD

Baylor College of Medicine Rare Disease Center

Baylor College of Medicine

📍 Houston, TX

🏥 NORD

Stanford Medicine Rare Disease Center

Stanford Medicine

📍 Stanford, CA

🔬 UDN

NIH Clinical Center Undiagnosed Diseases Program

National Institutes of Health

📍 Bethesda, MD

🔬 UDN

UCLA UDN Clinical Site

UCLA Health

📍 Los Angeles, CA

🔬 UDN

Baylor College of Medicine UDN Clinical Site

Baylor College of Medicine

📍 Houston, TX

🔬 UDN

Harvard/MGH UDN Clinical Site

Massachusetts General Hospital

📍 Boston, MA

🏥 NORD

Mayo Clinic Center for Individualized Medicine

Mayo Clinic

📍 Rochester, MN

👤 Mayo Clinic Center for Individualized Medicine

🏥 NORD

UCLA Rare Disease Day Program

UCLA Health

📍 Los Angeles, CA

Travel Grants

No travel grants are currently matched to SUNCT syndrome.

Search all travel grants →NORD Financial Assistance ↗

Community

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Latest news about SUNCT syndrome

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Caregiver Resources

NORD Caregiver Resources

Support, advocacy, and financial assistance for caregivers of rare disease patients.

Mental Health Support

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Family & Caregiver Grants

Financial assistance programs specifically for caregivers of rare disease patients.

Social Security Disability

Learn how rare disease patients may qualify for SSDI/SSI benefits.

Questions for your doctor

Bring these to your next appointment

  • Q1.What tests do I need to rule out a secondary cause like a tumor or structural problem in my brain?,Which medication do you recommend starting with, and what are the possible side effects?,How will we know if the treatment is working, and how long should I try it before considering a change?,Are there any surgical options available if medications do not help enough?,Are there any known triggers I should try to avoid?,Should I keep a headache diary, and what information should I record?,Are there any clinical trials or research studies I could participate in?

Common questions about SUNCT syndrome

What is SUNCT syndrome?

SUNCT syndrome stands for Short-lasting Unilateral Neuralgiform headache attacks with Conjunctival injection and Tearing. It is a rare type of headache disorder that belongs to a group called trigeminal autonomic cephalalgias (TACs). In SUNCT, people experience very brief but extremely painful headaches, usually felt on one side of the head, often around or behind the eye. These attacks are typically short — lasting anywhere from a few seconds to a few minutes — but they can happen many times a day, sometimes dozens or even hundreds of times. Along with the pain, people often notice redness in

How is SUNCT syndrome inherited?

SUNCT syndrome follows a sporadic inheritance pattern. Genetic counseling can help families understand recurrence risk and testing options.

At what age does SUNCT syndrome typically begin?

Typical onset of SUNCT syndrome is adult. Age of onset can vary across affected individuals.