Specialists for Sturge-Weber syndrome

19 physicians and care centers identified from ClinicalTrials.gov trial PIs, PubMed publications, and the NPPES NPI registry.

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Specialists are identified from ClinicalTrials.gov principal investigators, PubMed publications, and the NPI registry, then ranked through an automated scoring pipeline.

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Eric H Kossoff, MD, M.D
Rare Disease / Clinical Research
Johns Hopkins University
BALTIMORE, MD
PI×6
Anne M Comi, M.D., M.D
Rare Disease / Clinical Research
Hugo W. Moser Research Institute at Kennedy Krieger, Inc.
BALTIMORE, MD
PI×3
Leyre Aguado, MD PhD
Rare Disease / Clinical Research
Clinica Universidad de Navarra
PI×1
Anne M Comi, MD, M.D
Rare Disease / Clinical Research
Hugo W. Moser Research Institute at Kennedy Krieger, Inc.
BALTIMORE, MD
PI×2 1
Sharon Freedman, M.D., M.D
Rare Disease / Clinical Research
Duke Eye Center
DURHAM, NC
PI×1
Maider Pretel, MD PhD
Rare Disease / Clinical Research
Clinica Universidad de Navarra
PI×1
Laura Marqués, MD
Rare Disease / Clinical Research
Clinica Universidad de Navarra
PI×1 1
B. Wirostko, M.D.
Rare Disease / Clinical Research
Qlaris Bio, Inc.
PI×1
Melisa Ruiz-Gutierrez, M.D., M.D, Ph.D
Rare Disease / Clinical Research
Boston Children's Hospital
BOSTON, MA
PI×1
Timothy LeCras, PhD
Rare Disease / Clinical Research
Children's Hospital Medical Center, Cincinnati
PI×1
Jeffrey Loeb, MD, PhD
Rare Disease / Clinical Research
University of Illinois at Chicago
PI×1
Naiem Nassiri, MD, FSVS, RPVI, MD
Rare Disease / Clinical Research
The Vascular Care Group
DARIEN, CT
PI×1
Emily Bendel, MD, M.D
Rare Disease / Clinical Research
Mayo Clinic
ROCHESTER, MN
PI×1
Ekaterina M Listovskaya, BSc
Rare Disease / Clinical Research
The Vascular Anomalies Center (VAC) "Hemangioma",
PI×1
Guillaume Canaud, MD,PHD
Rare Disease / Clinical Research
Institut National de la Santé Et de la Recherche Médicale, France
PI×1
David A Woodrum, MD, PhD, LCSW
Rare Disease / Clinical Research
Mayo Clinic
MARION, VA
PI×1
Marcelo M Serra, MD
Rare Disease / Clinical Research
HHT Center of Excelence Hospital Italiano de Buenos Aires
PI×1
Urban W Geisthoff, Priv.-Doz. Dr.med.
Rare Disease / Clinical Research
Medical Faculty of the University of the Saarland and Hospitals of the City of Cologne
PI×1
John S Nelson, M.D,PhD
Rare Disease / Clinical Research
Beckman Laser Institute University of California Irvine
PI×1

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