Strongyloidiasis

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14Specialists8Treatment centers

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UniteRare data is sourced from FDA.gov, ClinicalTrials.gov, Orphanet, OMIM, and NORD.
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Overview

Strongyloidiasis is an infection caused by a tiny parasitic roundworm called Strongyloides stercoralis (and less commonly Strongyloides fuelleborni). Unlike most parasites, this worm has a unique ability to reproduce inside your body, which means an infection can last for decades — even your entire life — without you knowing it. The worm enters the body through the skin, usually by walking barefoot on contaminated soil. It then travels through the bloodstream to the lungs and eventually settles in the small intestine, where it lays eggs and causes ongoing infection. Most people with strongyloidiasis have mild or no symptoms, which is why it often goes undiagnosed for years. Common signs include stomach pain, diarrhea, a skin rash that moves around (called larva currens), and a raised level of certain immune cells called eosinophils in the blood. However, in people with weakened immune systems — such as those taking steroids, receiving chemotherapy, or living with HIV — the infection can become life-threatening. This dangerous form is called hyperinfection syndrome or disseminated strongyloidiasis, where the worms spread throughout the body and can carry harmful bacteria with them. The good news is that strongyloidiasis is treatable. The main treatment is a medicine called ivermectin, which is highly effective. Early diagnosis and treatment are very important, especially before starting any medication that suppresses the immune system. With proper treatment, most people recover fully.

Also known as:

Key symptoms:

Stomach pain or crampingDiarrhea, sometimes alternating with constipationNauseaA moving, itchy skin rash (called larva currens) that appears and disappears quicklyItchy skin, especially around the buttocks or thighsCough or wheezing (when larvae pass through the lungs)Unexplained weight lossBloatingHigh levels of eosinophils (a type of white blood cell) on a blood testFatigueIn severe cases: fever, severe abdominal pain, confusion, and signs of blood infection (sepsis)

Inheritance

Sporadic

Usually appears on its own, not inherited from a parent

Age of Onset

Variable

Can begin at different ages, from infancy through adulthood

Orphanet ↗NORD ↗

Treatments

No FDA-approved treatments are currently listed for Strongyloidiasis.

View clinical trials →

No actively recruiting trials found for Strongyloidiasis at this time.

New trials open frequently. Follow this disease to get notified.

Search ClinicalTrials.gov ↗Join the Strongyloidiasis community →

Specialists

14 foundView all specialists →
DB
Dora Buonfrate
Specialist
PI on 1 active trial
YM
Yupin Suputtamongkol, MD
Specialist
PI on 1 active trial
ZP
Zeno Bisoffi, MD, PhD
Specialist
PI on 1 active trial
AG
Angel Guevara
HARTFORD, CT
Specialist
PI on 1 active trial2 Strongyloidiasis publications
TM
Thomas B Nutman, M.D.
BETHESDA, MD
Specialist
PI on 7 active trials
LM
Lucy John, MD
Specialist
PI on 1 active trial1 Strongyloidiasis publication
AP
Ana Requena Méndez, PhD
Specialist
PI on 1 active trial
MP
Marleen Boelaert, PhD
Specialist
PI on 1 active trial
MP
Michael J Beach, Ph.D.
Specialist
PI on 1 active trial
KP
Katja Polman, PhD
Specialist
PI on 1 active trial
JP
Jürg Utzinger, PhD
Specialist
PI on 1 active trial
BM
Byron Arana, MD
Specialist
PI on 1 active trial
CC
Christina M Coyle
Specialist
PI on 1 active trial
AK
Alejandro Krolewiecki
Specialist
PI on 2 active trials

Treatment Centers

8 centers
🏥 NORD

Baylor College of Medicine Rare Disease Center

Baylor College of Medicine

📍 Houston, TX

🏥 NORD

Stanford Medicine Rare Disease Center

Stanford Medicine

📍 Stanford, CA

🔬 UDN

NIH Clinical Center Undiagnosed Diseases Program

National Institutes of Health

📍 Bethesda, MD

🔬 UDN

UCLA UDN Clinical Site

UCLA Health

📍 Los Angeles, CA

🔬 UDN

Baylor College of Medicine UDN Clinical Site

Baylor College of Medicine

📍 Houston, TX

🔬 UDN

Harvard/MGH UDN Clinical Site

Massachusetts General Hospital

📍 Boston, MA

🏥 NORD

Mayo Clinic Center for Individualized Medicine

Mayo Clinic

📍 Rochester, MN

👤 Mayo Clinic Center for Individualized Medicine

🏥 NORD

UCLA Rare Disease Day Program

UCLA Health

📍 Los Angeles, CA

Travel Grants

No travel grants are currently matched to Strongyloidiasis.

Search all travel grants →NORD Financial Assistance ↗

Community

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Latest news about Strongyloidiasis

No recent news articles for Strongyloidiasis.

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Caregiver Resources

NORD Caregiver Resources

Support, advocacy, and financial assistance for caregivers of rare disease patients.

Mental Health Support

Rare disease caregiving can be isolating. Connect with counseling and peer support.

Family & Caregiver Grants

Financial assistance programs specifically for caregivers of rare disease patients.

Social Security Disability

Learn how rare disease patients may qualify for SSDI/SSI benefits.

Questions for your doctor

Bring these to your next appointment

  • Q1.How do I know if my infection has been fully cleared after treatment?,Do I need to be tested again after finishing my medication, and how soon?,Am I at risk for the severe form of this infection given my current health or medications?,Should other members of my household or close contacts be tested?,Are there any medications I should avoid or discuss with you before taking, given this diagnosis?,What symptoms should prompt me to go to the emergency room?,If I need to start steroids or other immune-suppressing drugs in the future, what precautions should be taken?

Common questions about Strongyloidiasis

What is Strongyloidiasis?

Strongyloidiasis is an infection caused by a tiny parasitic roundworm called Strongyloides stercoralis (and less commonly Strongyloides fuelleborni). Unlike most parasites, this worm has a unique ability to reproduce inside your body, which means an infection can last for decades — even your entire life — without you knowing it. The worm enters the body through the skin, usually by walking barefoot on contaminated soil. It then travels through the bloodstream to the lungs and eventually settles in the small intestine, where it lays eggs and causes ongoing infection. Most people with strongylo

How is Strongyloidiasis inherited?

Strongyloidiasis follows a sporadic inheritance pattern. Genetic counseling can help families understand recurrence risk and testing options.

Which specialists treat Strongyloidiasis?

14 specialists and care centers treating Strongyloidiasis are listed on UniteRare, sourced from ClinicalTrials.gov principal investigators, published research, and the NPPES NPI registry.