Spondylometaphyseal dysplasia, A4 type

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ORPHA:168555OMIM:609052Q77.8
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Overview

Spondylometaphyseal dysplasia, A4 type (also called SMD type A4) is an extremely rare genetic bone disorder that affects the development of the spine and the ends of long bones (called metaphyses). It belongs to a group of skeletal conditions known as spondylometaphyseal dysplasias, which share features of abnormal vertebrae (bones of the spine) and abnormal growth areas near the ends of long bones. Children with this condition typically present with short stature, skeletal abnormalities visible on X-rays, and changes in the shape of their vertebrae (platyspondyly). The metaphyses of the long bones — the areas near the growth plates in the arms and legs — may appear widened or irregular on imaging. Because this is such a rare condition, the full range of symptoms and the natural history are not completely understood. Affected individuals may experience limb shortening, waddling gait, and joint problems. Some patients may also develop curvature of the spine (scoliosis or kyphosis). Growth is often significantly below average. There is currently no cure for this condition, and treatment focuses on managing symptoms, supporting mobility, and monitoring skeletal development over time. Orthopedic care, physical therapy, and regular follow-up with specialists are the main pillars of management. Genetic counseling is recommended for affected families to understand the inheritance pattern and recurrence risk.

Key symptoms:

Short statureShort limbs relative to the trunkAbnormal shape of the vertebrae (flattened spine bones)Widened or irregular ends of long bonesWaddling gaitBowed legs or knock kneesCurvature of the spine (scoliosis or kyphosis)Joint stiffness or limited range of motionDelayed motor milestones such as walkingBack pain or leg pain

Clinical phenotype terms (8)— hover any for plain English
Spondylometaphyseal dysplasiaHP:0002657Flared, irregular rib endsHP:0006603
Inheritance

Autosomal recessive

Passed on when both parents carry the same gene change; often skips generations

Age of Onset

Childhood

Begins in childhood, roughly ages 1 to 12

Orphanet ↗OMIM ↗NORD ↗

Treatments

No FDA-approved treatments are currently listed for Spondylometaphyseal dysplasia, A4 type.

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No actively recruiting trials found for Spondylometaphyseal dysplasia, A4 type at this time.

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No specialists are currently listed for Spondylometaphyseal dysplasia, A4 type.

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Treatment Centers

8 centers
🏥 NORD

Baylor College of Medicine Rare Disease Center

Baylor College of Medicine

📍 Houston, TX

🏥 NORD

Stanford Medicine Rare Disease Center

Stanford Medicine

📍 Stanford, CA

🔬 UDN

NIH Clinical Center Undiagnosed Diseases Program

National Institutes of Health

📍 Bethesda, MD

🔬 UDN

UCLA UDN Clinical Site

UCLA Health

📍 Los Angeles, CA

🔬 UDN

Baylor College of Medicine UDN Clinical Site

Baylor College of Medicine

📍 Houston, TX

🔬 UDN

Harvard/MGH UDN Clinical Site

Massachusetts General Hospital

📍 Boston, MA

🏥 NORD

Mayo Clinic Center for Individualized Medicine

Mayo Clinic

📍 Rochester, MN

👤 Mayo Clinic Center for Individualized Medicine

🏥 NORD

UCLA Rare Disease Day Program

UCLA Health

📍 Los Angeles, CA

Travel Grants

No travel grants are currently matched to Spondylometaphyseal dysplasia, A4 type.

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Community

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Caregiver Resources

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Social Security Disability

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Questions for your doctor

Bring these to your next appointment

  • Q1.What specific type of spondylometaphyseal dysplasia does my child have, and how was it confirmed?,What skeletal complications should I watch for as my child grows?,How often should we have X-rays or other imaging done?,Is genetic testing available to identify the exact gene involved?,What physical therapy or exercises are recommended to support mobility?,Are there any clinical trials or research studies we could participate in?,Should other family members be tested or evaluated?

Common questions about Spondylometaphyseal dysplasia, A4 type

What is Spondylometaphyseal dysplasia, A4 type?

Spondylometaphyseal dysplasia, A4 type (also called SMD type A4) is an extremely rare genetic bone disorder that affects the development of the spine and the ends of long bones (called metaphyses). It belongs to a group of skeletal conditions known as spondylometaphyseal dysplasias, which share features of abnormal vertebrae (bones of the spine) and abnormal growth areas near the ends of long bones. Children with this condition typically present with short stature, skeletal abnormalities visible on X-rays, and changes in the shape of their vertebrae (platyspondyly). The metaphyses of the long

How is Spondylometaphyseal dysplasia, A4 type inherited?

Spondylometaphyseal dysplasia, A4 type follows a autosomal recessive inheritance pattern. Genetic counseling can help families understand recurrence risk and testing options.

At what age does Spondylometaphyseal dysplasia, A4 type typically begin?

Typical onset of Spondylometaphyseal dysplasia, A4 type is childhood. Age of onset can vary across affected individuals.