Overview
Also known as:
Clinical phenotype terms— hover any for plain English:
Treatments
1 availableDuraclon
indicated in combination with opiates for the treatment of severe pain in cancer patients that is not adequately relieved by opioid analgesics alone
Clinical Trials
View all trials with filters →No actively recruiting trials found for Severe generalized junctional epidermolysis bullosa at this time.
New trials open frequently. Follow this disease to get notified.
Specialists
View all specialists →No specialists are currently listed for Severe generalized junctional epidermolysis bullosa.
Treatment Centers
8 centersBaylor College of Medicine Rare Disease Center ↗
Baylor College of Medicine
📍 Houston, TX
🏥 NORDStanford Medicine Rare Disease Center ↗
Stanford Medicine
📍 Stanford, CA
🔬 UDNNIH Clinical Center Undiagnosed Diseases Program ↗
National Institutes of Health
📍 Bethesda, MD
🔬 UDNUCLA UDN Clinical Site ↗
UCLA Health
📍 Los Angeles, CA
🔬 UDNBaylor College of Medicine UDN Clinical Site ↗
Baylor College of Medicine
📍 Houston, TX
🔬 UDNHarvard/MGH UDN Clinical Site ↗
Massachusetts General Hospital
📍 Boston, MA
🏥 NORDMayo Clinic Center for Individualized Medicine ↗
Mayo Clinic
📍 Rochester, MN
👤 Mayo Clinic Center for Individualized Medicine
🏥 NORDUCLA Rare Disease Day Program ↗
UCLA Health
📍 Los Angeles, CA
Financial Resources
1 resourcesCNJ-016
Cangene Corporation
CNJ-016 — Contact Cangene Corporation
Travel Grants
No travel grants are currently matched to Severe generalized junctional epidermolysis bullosa.
Community
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Start the conversation →Latest news about Severe generalized junctional epidermolysis bullosa
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Caregiver Resources
NORD Caregiver Resources
Support, advocacy, and financial assistance for caregivers of rare disease patients.
Mental Health Support
Rare disease caregiving can be isolating. Connect with counseling and peer support.
Family & Caregiver Grants
Financial assistance programs specifically for caregivers of rare disease patients.
Social Security Disability
Learn how rare disease patients may qualify for SSDI/SSI benefits.
Common questions about Severe generalized junctional epidermolysis bullosa
What treatment and support options exist for Severe generalized junctional epidermolysis bullosa?
2 patient support programs are currently tracked on UniteRare for Severe generalized junctional epidermolysis bullosa. See the treatments and support programs sections for copay assistance, eligibility, and contact details.