Renin-angiotensin-aldosterone system-blocker-induced angioedema

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ORPHA:100057OMIM:300909T78.3
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8Treatment centers2Financial resources

Where are you in your journey?

UniteRare data is sourced from FDA.gov, ClinicalTrials.gov, Orphanet, OMIM, and NORD.
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Overview

Also known as:

Clinical phenotype terms— hover any for plain English:

AngioedemaHP:0100665Abnormal capillary physiologyHP:0025018Swollen lipHP:0031244Tongue edemaHP:0040315Palpebral edemaHP:0100540Upper airway obstructionHP:0002781Pharyngeal edemaHP:0011855Laryngeal edemaHP:0012027
Orphanet ↗OMIM ↗NORD ↗

FDA & Trial Timeline

2 events
Jun 2017

Haegarda: FDA approved

For routine prophylaxis to prevent Hereditary Angioedema (HAE) attacks in adolescent and adult patients.

FDAcompleted
Oct 2009

Berinert: FDA approved

Treatment of acute attacks of hereditary angioedema.

FDAcompleted

Data sourced from FDA regulatory filings and ClinicalTrials.gov. Updated periodically.

Treatments

No FDA-approved treatments are currently listed for Renin-angiotensin-aldosterone system-blocker-induced angioedema.

View clinical trials →

No actively recruiting trials found for Renin-angiotensin-aldosterone system-blocker-induced angioedema at this time.

New trials open frequently. Follow this disease to get notified.

Search ClinicalTrials.gov ↗Join the Renin-angiotensin-aldosterone system-blocker-induced angioedema community →

No specialists are currently listed for Renin-angiotensin-aldosterone system-blocker-induced angioedema.

View NORD Rare Disease Centers ↗Undiagnosed Disease Network ↗

Treatment Centers

8 centers
🏥 NORD

Baylor College of Medicine Rare Disease Center

Baylor College of Medicine

📍 Houston, TX

🏥 NORD

Stanford Medicine Rare Disease Center

Stanford Medicine

📍 Stanford, CA

🔬 UDN

NIH Clinical Center Undiagnosed Diseases Program

National Institutes of Health

📍 Bethesda, MD

🔬 UDN

UCLA UDN Clinical Site

UCLA Health

📍 Los Angeles, CA

🔬 UDN

Baylor College of Medicine UDN Clinical Site

Baylor College of Medicine

📍 Houston, TX

🔬 UDN

Harvard/MGH UDN Clinical Site

Massachusetts General Hospital

📍 Boston, MA

🏥 NORD

Mayo Clinic Center for Individualized Medicine

Mayo Clinic

📍 Rochester, MN

👤 Mayo Clinic Center for Individualized Medicine

🏥 NORD

UCLA Rare Disease Day Program

UCLA Health

📍 Los Angeles, CA

Financial Resources

2 resources

Haegarda

CSL Behring LLC

Unverified — confirm before calling
copay card
copay assistancePatient Assistance
Accepting applications

Berinert

CSL Behring LLC

Unverified — confirm before calling
copay card
copay assistancePatient Assistance
Accepting applications

Travel Grants

No travel grants are currently matched to Renin-angiotensin-aldosterone system-blocker-induced angioedema.

Search all travel grants →NORD Financial Assistance ↗

Community

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Latest news about Renin-angiotensin-aldosterone system-blocker-induced angioedema

No recent news articles for Renin-angiotensin-aldosterone system-blocker-induced angioedema.

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Caregiver Resources

NORD Caregiver Resources

Support, advocacy, and financial assistance for caregivers of rare disease patients.

Mental Health Support

Rare disease caregiving can be isolating. Connect with counseling and peer support.

Family & Caregiver Grants

Financial assistance programs specifically for caregivers of rare disease patients.

Social Security Disability

Learn how rare disease patients may qualify for SSDI/SSI benefits.

Common questions about Renin-angiotensin-aldosterone system-blocker-induced angioedema

What treatment and support options exist for Renin-angiotensin-aldosterone system-blocker-induced angioedema?

2 patient support programs are currently tracked on UniteRare for Renin-angiotensin-aldosterone system-blocker-induced angioedema. See the treatments and support programs sections for copay assistance, eligibility, and contact details.