Rare non-syndromic intellectual disability

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8Treatment centers1Financial resources

Where are you in your journey?

UniteRare data is sourced from FDA.gov, ClinicalTrials.gov, Orphanet, OMIM, and NORD.
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Overview

Also known as:

Orphanet ↗NORD ↗

Treatments

No FDA-approved treatments are currently listed for Rare non-syndromic intellectual disability.

View clinical trials →

No actively recruiting trials found for Rare non-syndromic intellectual disability at this time.

New trials open frequently. Follow this disease to get notified.

Search ClinicalTrials.gov ↗Join the Rare non-syndromic intellectual disability community →

No specialists are currently listed for Rare non-syndromic intellectual disability.

View NORD Rare Disease Centers ↗Undiagnosed Disease Network ↗

Treatment Centers

8 centers
🏥 NORD

Baylor College of Medicine Rare Disease Center

Baylor College of Medicine

📍 Houston, TX

🏥 NORD

Stanford Medicine Rare Disease Center

Stanford Medicine

📍 Stanford, CA

🔬 UDN

NIH Clinical Center Undiagnosed Diseases Program

National Institutes of Health

📍 Bethesda, MD

🔬 UDN

UCLA UDN Clinical Site

UCLA Health

📍 Los Angeles, CA

🔬 UDN

Baylor College of Medicine UDN Clinical Site

Baylor College of Medicine

📍 Houston, TX

🔬 UDN

Harvard/MGH UDN Clinical Site

Massachusetts General Hospital

📍 Boston, MA

🏥 NORD

Mayo Clinic Center for Individualized Medicine

Mayo Clinic

📍 Rochester, MN

👤 Mayo Clinic Center for Individualized Medicine

🏥 NORD

UCLA Rare Disease Day Program

UCLA Health

📍 Los Angeles, CA

Financial Resources

1 resources

ALYFTREK

Vertex Pharmaceuticals Incorporated

ALYFTREK Patient Support (Vertex GPS)

Patient Assistance
Manufacturer Program
Accepting applications

Travel Grants

No travel grants are currently matched to Rare non-syndromic intellectual disability.

Search all travel grants →NORD Financial Assistance ↗

Community

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Latest news about Rare non-syndromic intellectual disability

1 articles
NewsFDA
FDA Approves ALYFTREK
ALYFTREK (DEUTIVACAFTOR) received FDA approval.
See all news about Rare non-syndromic intellectual disability

Caregiver Resources

NORD Caregiver Resources

Support, advocacy, and financial assistance for caregivers of rare disease patients.

Mental Health Support

Rare disease caregiving can be isolating. Connect with counseling and peer support.

Family & Caregiver Grants

Financial assistance programs specifically for caregivers of rare disease patients.

Social Security Disability

Learn how rare disease patients may qualify for SSDI/SSI benefits.

Common questions about Rare non-syndromic intellectual disability

What treatment and support options exist for Rare non-syndromic intellectual disability?

1 patient support program are currently tracked on UniteRare for Rare non-syndromic intellectual disability. See the treatments and support programs sections for copay assistance, eligibility, and contact details.