Rare gastroesophageal disease

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ORPHA:101936
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1FDA treatments1Specialists8Treatment centers

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UniteRare data is sourced from FDA.gov, ClinicalTrials.gov, Orphanet, OMIM, and NORD.
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Overview

Rare gastroesophageal disease is a broad category used in medical classification systems (Orphanet code 101936) to group uncommon conditions that affect the esophagus (the tube that carries food from your mouth to your stomach) and the stomach. Because this is a grouping term rather than a single specific disease, it covers a range of rare disorders that can cause problems with swallowing, digestion, stomach acid regulation, and the structure or function of the upper digestive tract. Symptoms can vary widely depending on the specific condition involved but often include difficulty swallowing (dysphagia), heartburn or acid reflux that does not respond well to standard treatments, chest pain, nausea, vomiting, and unexplained weight loss. Some of these conditions may involve abnormal tissue growth, inflammation, or structural abnormalities of the esophagus or stomach lining. Treatment depends entirely on the specific rare gastroesophageal condition diagnosed. Options may range from dietary changes and medications to control acid and inflammation, to surgical procedures in more severe cases. Because these diseases are rare, patients often benefit from being seen at specialized centers with experience in uncommon digestive disorders. Early diagnosis and a coordinated care team are important for managing symptoms and preventing complications.

Key symptoms:

Difficulty swallowing food or liquidsPersistent heartburn or acid refluxChest pain not related to the heartNausea and vomitingUnexplained weight lossFeeling of food getting stuck in the throat or chestPain when swallowingRegurgitation of food or sour liquidBloating or feeling full quicklyChronic cough or hoarsenessLoss of appetiteAbdominal pain or discomfort

Inheritance

Variable

Can be inherited in different ways depending on the underlying gene

Age of Onset

Variable

Can begin at different ages, from infancy through adulthood

Orphanet ↗NORD ↗

Treatments

1 available

Cimetidine

CIMETIDINE· Chartwell RX, LLC

Erosive gastroesophageal reflux (GERD). Erosive esophagitis diagnosed by endoscopy. Treatment is indicated for 12 weeks for healing of lesions and control of symptoms

No actively recruiting trials found for Rare gastroesophageal disease at this time.

New trials open frequently. Follow this disease to get notified.

Search ClinicalTrials.gov ↗Join the Rare gastroesophageal disease community →

Specialists

1 foundView all specialists →
BP
BioNTech Responsible Person
Specialist
PI on 18 active trials

Treatment Centers

8 centers
🏥 NORD

Baylor College of Medicine Rare Disease Center

Baylor College of Medicine

📍 Houston, TX

🏥 NORD

Stanford Medicine Rare Disease Center

Stanford Medicine

📍 Stanford, CA

🔬 UDN

NIH Clinical Center Undiagnosed Diseases Program

National Institutes of Health

📍 Bethesda, MD

🔬 UDN

UCLA UDN Clinical Site

UCLA Health

📍 Los Angeles, CA

🔬 UDN

Baylor College of Medicine UDN Clinical Site

Baylor College of Medicine

📍 Houston, TX

🔬 UDN

Harvard/MGH UDN Clinical Site

Massachusetts General Hospital

📍 Boston, MA

🏥 NORD

Mayo Clinic Center for Individualized Medicine

Mayo Clinic

📍 Rochester, MN

👤 Mayo Clinic Center for Individualized Medicine

🏥 NORD

UCLA Rare Disease Day Program

UCLA Health

📍 Los Angeles, CA

Travel Grants

No travel grants are currently matched to Rare gastroesophageal disease.

Search all travel grants →NORD Financial Assistance ↗

Community

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Latest news about Rare gastroesophageal disease

No recent news articles for Rare gastroesophageal disease.

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Caregiver Resources

NORD Caregiver Resources

Support, advocacy, and financial assistance for caregivers of rare disease patients.

Mental Health Support

Rare disease caregiving can be isolating. Connect with counseling and peer support.

Family & Caregiver Grants

Financial assistance programs specifically for caregivers of rare disease patients.

Social Security Disability

Learn how rare disease patients may qualify for SSDI/SSI benefits.

Questions for your doctor

Bring these to your next appointment

  • Q1.What is the specific rare gastroesophageal condition I have, and what causes it?,Is my condition hereditary, and should my family members be tested?,What tests or monitoring will I need on a regular basis?,What are the best treatment options for my specific condition?,Are there any dietary changes that could help manage my symptoms?,Should I be referred to a specialized center with experience in rare digestive diseases?,Are there any clinical trials or new treatments being studied for my condition?

Common questions about Rare gastroesophageal disease

What is Rare gastroesophageal disease?

Rare gastroesophageal disease is a broad category used in medical classification systems (Orphanet code 101936) to group uncommon conditions that affect the esophagus (the tube that carries food from your mouth to your stomach) and the stomach. Because this is a grouping term rather than a single specific disease, it covers a range of rare disorders that can cause problems with swallowing, digestion, stomach acid regulation, and the structure or function of the upper digestive tract. Symptoms can vary widely depending on the specific condition involved but often include difficulty swallowing

Which specialists treat Rare gastroesophageal disease?

1 specialists and care centers treating Rare gastroesophageal disease are listed on UniteRare, sourced from ClinicalTrials.gov principal investigators, published research, and the NPPES NPI registry.