Rare disorder due to unbalanced inter-twin blood transfusion

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ORPHA:617310
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1FDA treatments8Treatment centers

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UniteRare data is sourced from FDA.gov, ClinicalTrials.gov, Orphanet, OMIM, and NORD.
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Overview

Orphanet ↗NORD ↗

Treatments

1 available

Deferasirox

DEFERASIROX· MSN LABORATORIES PRIVATE LIMITED■ Boxed Warning

Deferasirox tablets are indicated for the treatment of chronic iron overload due to blood transfusions in patients 2 years of age and older.

No actively recruiting trials found for Rare disorder due to unbalanced inter-twin blood transfusion at this time.

New trials open frequently. Follow this disease to get notified.

Search ClinicalTrials.gov ↗Join the Rare disorder due to unbalanced inter-twin blood transfusion community →

No specialists are currently listed for Rare disorder due to unbalanced inter-twin blood transfusion.

View NORD Rare Disease Centers ↗Undiagnosed Disease Network ↗

Treatment Centers

8 centers
🏥 NORD

Baylor College of Medicine Rare Disease Center

Baylor College of Medicine

📍 Houston, TX

🏥 NORD

Stanford Medicine Rare Disease Center

Stanford Medicine

📍 Stanford, CA

🔬 UDN

NIH Clinical Center Undiagnosed Diseases Program

National Institutes of Health

📍 Bethesda, MD

🔬 UDN

UCLA UDN Clinical Site

UCLA Health

📍 Los Angeles, CA

🔬 UDN

Baylor College of Medicine UDN Clinical Site

Baylor College of Medicine

📍 Houston, TX

🔬 UDN

Harvard/MGH UDN Clinical Site

Massachusetts General Hospital

📍 Boston, MA

🏥 NORD

Mayo Clinic Center for Individualized Medicine

Mayo Clinic

📍 Rochester, MN

👤 Mayo Clinic Center for Individualized Medicine

🏥 NORD

UCLA Rare Disease Day Program

UCLA Health

📍 Los Angeles, CA

Travel Grants

No travel grants are currently matched to Rare disorder due to unbalanced inter-twin blood transfusion.

Search all travel grants →NORD Financial Assistance ↗

Community

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Latest news about Rare disorder due to unbalanced inter-twin blood transfusion

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Caregiver Resources

NORD Caregiver Resources

Support, advocacy, and financial assistance for caregivers of rare disease patients.

Mental Health Support

Rare disease caregiving can be isolating. Connect with counseling and peer support.

Family & Caregiver Grants

Financial assistance programs specifically for caregivers of rare disease patients.

Social Security Disability

Learn how rare disease patients may qualify for SSDI/SSI benefits.

Common questions about Rare disorder due to unbalanced inter-twin blood transfusion

What treatment and support options exist for Rare disorder due to unbalanced inter-twin blood transfusion?

1 patient support program are currently tracked on UniteRare for Rare disorder due to unbalanced inter-twin blood transfusion. See the treatments and support programs sections for copay assistance, eligibility, and contact details.