Rare disorder due to inadequate sharing of the placenta

Last reviewed

🖨 Print for my doctorAdvocacy Hub →
ORPHA:617313
Who is this for?
Show terms as
3FDA treatments8Treatment centers3Financial resources

Where are you in your journey?

ℹ
UniteRare data is sourced from FDA.gov, ClinicalTrials.gov, Orphanet, OMIM, and NORD.
Report missing data

Overview

Orphanet ↗NORD ↗

Treatments

3 available

Sogroya

somapacitan-beco· Novo Nordisk Pharmaceuticals

Growth failure due to inadequate secretion of endogenous growth hormone (GH)

View Details →FDA Label ↗Patient Assistance ↗

Skytrofa

lonapegsomatropin-tcgd· Ascendis Pharma Endocrinology Division A/S

Treatment of pediatric patients 1 year and older who weigh at least 11.5 kg and have growth failure due to inadequate secretion of endogenous growth hormone (GH)

View Details →FDA Label ↗Copay Card ↗Patient Assistance ↗

Ngenla

somatrogon-ghla· Pfizer Ireland Pharmaceuticals

NGENLA is indicated for the treatment of pediatric patients aged 3 years and older who have growth failure due to an inadequate secretion of endogenous growth hormone

View Details →FDA Label ↗Copay Card ↗Patient Assistance ↗

Clinical Trials

View all trials with filters →

No actively recruiting trials found for Rare disorder due to inadequate sharing of the placenta at this time.

New trials open frequently. Follow this disease to get notified.

Search ClinicalTrials.gov ↗Join the Rare disorder due to inadequate sharing of the placenta community →

Specialists

View all specialists →

No specialists are currently listed for Rare disorder due to inadequate sharing of the placenta.

View NORD Rare Disease Centers ↗Undiagnosed Disease Network ↗

Treatment Centers

8 centers
🏥 NORD

Baylor College of Medicine Rare Disease Center ↗

Baylor College of Medicine

📍 Houston, TX

🏥 NORD

Stanford Medicine Rare Disease Center ↗

Stanford Medicine

📍 Stanford, CA

🔬 UDN

NIH Clinical Center Undiagnosed Diseases Program ↗

National Institutes of Health

📍 Bethesda, MD

🔬 UDN

UCLA UDN Clinical Site ↗

UCLA Health

📍 Los Angeles, CA

🔬 UDN

Baylor College of Medicine UDN Clinical Site ↗

Baylor College of Medicine

📍 Houston, TX

🔬 UDN

Harvard/MGH UDN Clinical Site ↗

Massachusetts General Hospital

📍 Boston, MA

🏥 NORD

Mayo Clinic Center for Individualized Medicine ↗

Mayo Clinic

📍 Rochester, MN

👤 Mayo Clinic Center for Individualized Medicine

🏥 NORD

UCLA Rare Disease Day Program ↗

UCLA Health

📍 Los Angeles, CA

Financial Resources

3 resources
Sogroya(somapacitan-beco)— Novo Nordisk Pharmaceuticals
Skytrofa(lonapegsomatropin-tcgd)— Ascendis Pharma Endocrinology Division A/S
Ngenla(somatrogon-ghla)— Pfizer Ireland Pharmaceuticals

Travel Grants

No travel grants are currently matched to Rare disorder due to inadequate sharing of the placenta.

Search all travel grants →NORD Financial Assistance ↗

Community

Open Rare disorder due to inadequate sharing of the placentaForum →

No community posts yet. Be the first to share your experience with Rare disorder due to inadequate sharing of the placenta.

Start the conversation →

Latest news about Rare disorder due to inadequate sharing of the placenta

No recent news articles for Rare disorder due to inadequate sharing of the placenta.

Follow this condition to be notified when news becomes available.

Caregiver Resources

NORD Caregiver Resources

Support, advocacy, and financial assistance for caregivers of rare disease patients.

Mental Health Support

Rare disease caregiving can be isolating. Connect with counseling and peer support.

Family & Caregiver Grants

Financial assistance programs specifically for caregivers of rare disease patients.

Social Security Disability

Learn how rare disease patients may qualify for SSDI/SSI benefits.