Rare atrial defect and interatrial communication

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ORPHA:98727
Who is this for?
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1FDA treatments8Treatment centers1Financial resources

Where are you in your journey?

UniteRare data is sourced from FDA.gov, ClinicalTrials.gov, Orphanet, OMIM, and NORD.
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Overview

Also known as:

Orphanet ↗NORD ↗

FDA & Trial Timeline

1 event
Apr 2022

Cuvrior: FDA approved

Treatment of adult patients with stable Wilson®s disease who are de-coppered and tolerant to penicillamine

FDAcompleted

Data sourced from FDA regulatory filings and ClinicalTrials.gov. Updated periodically.

Treatments

1 available

Cuvrior

trientine tetrahydrochloride· OrphalanOrphan Drug

Treatment of adult patients with stable Wilson�s disease who are de-coppered and tolerant to penicillamine

No actively recruiting trials found for Rare atrial defect and interatrial communication at this time.

New trials open frequently. Follow this disease to get notified.

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No specialists are currently listed for Rare atrial defect and interatrial communication.

View NORD Rare Disease Centers ↗Undiagnosed Disease Network ↗

Treatment Centers

8 centers
🏥 NORD

Baylor College of Medicine Rare Disease Center

Baylor College of Medicine

📍 Houston, TX

🏥 NORD

Stanford Medicine Rare Disease Center

Stanford Medicine

📍 Stanford, CA

🔬 UDN

NIH Clinical Center Undiagnosed Diseases Program

National Institutes of Health

📍 Bethesda, MD

🔬 UDN

UCLA UDN Clinical Site

UCLA Health

📍 Los Angeles, CA

🔬 UDN

Baylor College of Medicine UDN Clinical Site

Baylor College of Medicine

📍 Houston, TX

🔬 UDN

Harvard/MGH UDN Clinical Site

Massachusetts General Hospital

📍 Boston, MA

🏥 NORD

Mayo Clinic Center for Individualized Medicine

Mayo Clinic

📍 Rochester, MN

👤 Mayo Clinic Center for Individualized Medicine

🏥 NORD

UCLA Rare Disease Day Program

UCLA Health

📍 Los Angeles, CA

Financial Resources

1 resources
Cuvrior(trientine tetrahydrochloride)Orphalan

Travel Grants

No travel grants are currently matched to Rare atrial defect and interatrial communication.

Search all travel grants →NORD Financial Assistance ↗

Community

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Latest news about Rare atrial defect and interatrial communication

No recent news articles for Rare atrial defect and interatrial communication.

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Caregiver Resources

NORD Caregiver Resources

Support, advocacy, and financial assistance for caregivers of rare disease patients.

Mental Health Support

Rare disease caregiving can be isolating. Connect with counseling and peer support.

Family & Caregiver Grants

Financial assistance programs specifically for caregivers of rare disease patients.

Social Security Disability

Learn how rare disease patients may qualify for SSDI/SSI benefits.

Common questions about Rare atrial defect and interatrial communication

What treatment and support options exist for Rare atrial defect and interatrial communication?

1 patient support program are currently tracked on UniteRare for Rare atrial defect and interatrial communication. See the treatments and support programs sections for copay assistance, eligibility, and contact details.