Proliferating trichilemmal cyst

A proliferating trichilemmal cyst (also called a proliferating trichilemmal tumor or proliferating pilar cyst) is a rare growth that develops from the outer root sheath of a hair follicle, most often on the scalp. It starts as a slow-growing lump under the skin that can look and feel like a simple cyst at first. Over time, it may grow larger and, in some cases, can change into a more aggressive form that behaves like a skin cancer. Most of these growths are benign (not cancerous), but a small number can become malignant (cancerous), which is why doctors take them seriously. The condition most commonly affects middle-aged to older women, and the scalp is by far the most frequent location. The lump may be painless for a long time, but it can become tender, ulcerate (break open), or bleed as it grows. Because it can look similar to other skin tumors, a tissue biopsy is needed to confirm the diagnosis. Treatment usually involves surgical removal of the entire growth. When caught early and fully removed, the outlook is generally very good. However, if the tumor has developed cancerous features or has spread, more aggressive treatment such as wider surgery or radiation therapy may be needed. Regular follow-up after surgery is important to watch for any return of the growth.

Bring these to your next appointment

• Q1.Is my tumor benign, borderline, or malignant, and what does that mean for my treatment?,Were the surgical margins clear, and is there any chance the tumor was not fully removed?,How often do I need follow-up appointments, and what should I watch for between visits?,Do I need any additional treatment such as radiation after surgery?,What are the chances this tumor could come back, and what would treatment look like if it does?,Should any of my family members be checked for similar growths?,Are there any clinical trials or specialist centers I should know about for this condition?

Common questions about Proliferating trichilemmal cyst