Posterior urethral valve

Last reviewed

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ORPHA:93110OMIM:618612Q64.2
Who is this for?
Show terms as
3Active trials36Specialists8Treatment centers

Where are you in your journey?

ℹ
UniteRare data is sourced from FDA.gov, ClinicalTrials.gov, Orphanet, OMIM, and NORD.
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Overview

Also known as:

PUV

Clinical phenotype terms— hover any for plain English:

Fetal pyelectasisHP:0010945Dilatation of the bladderHP:0010955Fetal megacystisHP:0010956PyelonephritisHP:0012330Urethral stenosisHP:0008661Congenital posterior urethral valveHP:0010957Bladder outlet obstructionHP:0041047Bladder diverticulumHP:0000015
Orphanet ↗OMIM ↗NORD ↗

FDA & Trial Timeline

4 events
May 2025Outcomes of Posterior Urethral Valve Fulguration

Assiut University

TrialNOT YET RECRUITING
Nov 2024Efficacy and Safety of Tamsulosin for Children with Posterior Urethral Valve.

Mansoura University — PHASE3

TrialRECRUITING
Aug 2024Study of the Quality of Life in School Aged-children With Posterior Urethral Valves

Hospices Civils de Lyon

TrialRECRUITING
Jun 2021Concomitant Renal and Urinary Bladder Allograft Transplantation

Mayo Clinic — EARLY_PHASE1

TrialRECRUITING

Data sourced from FDA regulatory filings and ClinicalTrials.gov. Updated periodically.

Treatments

No FDA-approved treatments are currently listed for Posterior urethral valve.

3 clinical trialsare actively recruiting — trials can provide access to cutting-edge therapies.

View clinical trials →

Clinical Trials

3 recruitingView all trials with filters →
Phase 31 trial
Efficacy and Safety of Tamsulosin for Children with Posterior Urethral Valve.
Phase 3
Actively Recruiting
PI: Ashraf Tarek Hafez (Urology and Nephrology center,Mansoura university) · Sites: Al Mansurah, Dakahlia Governorate · Age: 0–12 yrs
View on ClinicalTrials.gov ↗I'm interested →
Other1 trial
Study of the Quality of Life in School Aged-children With Posterior Urethral Valves
Actively Recruiting
PI: BIDAULT Valeska, MD (Hospices Civils de Lyon) · Sites: Bron, Bron · Age: 6–17 yrs
View on ClinicalTrials.gov ↗I'm interested →

Specialists

Showing 25 of 36View all specialists →
AE
Ahmed Elkashef
Specialist
PI on 2 active trials
MH
Mohamed Hussiny
Specialist
PI on 1 active trial
TH
Tamer Helmy
Specialist
PI on 1 active trial4 Posterior urethral valve publications
TM
Thomas Blanc, MD
Specialist
PI on 1 active trial
BM
BIDAULT Valeska, MD
Specialist
PI on 1 active trial
JM
Jean Michel Guys, MD
Specialist
PI on 1 active trial
TM
Thierry Merrot, MD
Specialist
PI on 1 active trial
MM
Marc David Leclair, MD
BEDFORD, NH
Specialist
PI on 1 active trial
FM
Frédérique Sauvat, MD
Specialist
PI on 1 active trial
FM
Frédéric Auber, MD
Specialist
PI on 1 active trial
MM
Marie-Laurence Poli-merol, MD
Specialist
PI on 1 active trial
EM
Eric Dobremez, MD
Specialist
PI on 1 active trial
LM
Laurent Fourcade, MD
Specialist
PI on 1 active trial1 Posterior urethral valve publication
NM
Nicolas Kalfa, MD
Specialist
PI on 1 active trial
BF
Benjamin Frémond
Specialist
PI on 1 active trial10 Posterior urethral valve publications
GM
Georges Audry, MD
Specialist
PI on 1 active trial1 Posterior urethral valve publication
AM
Alaa El Ghoneimi, MD
Specialist
PI on 1 active trial1 Posterior urethral valve publication
MR
Mandy Rickard
Specialist
2 Posterior urethral valve publications
JS
Joana Dos Santos
RIVERSIDE, CA
Specialist
2 Posterior urethral valve publications
AK
Adree Khondker
Specialist
2 Posterior urethral valve publications
AL
Armando J Lorenzo
Specialist
2 Posterior urethral valve publications
PY
Priyank Yadav
Specialist
2 Posterior urethral valve publications
PM
Patricio Gargollo, MD
ROCHESTER, MN
Specialist
PI on 1 active trial
MP
Michael Belfort, MD PHD
HOUSTON, TX
Specialist
PI on 2 active trials
PV
Prayong Vachvanichsanong
Specialist
1 Posterior urethral valve publication

Treatment Centers

8 centers
🏥 NORD

Baylor College of Medicine Rare Disease Center ↗

Baylor College of Medicine

📍 Houston, TX

🏥 NORD

Stanford Medicine Rare Disease Center ↗

Stanford Medicine

📍 Stanford, CA

🔬 UDN

NIH Clinical Center Undiagnosed Diseases Program ↗

National Institutes of Health

📍 Bethesda, MD

🔬 UDN

UCLA UDN Clinical Site ↗

UCLA Health

📍 Los Angeles, CA

🔬 UDN

Baylor College of Medicine UDN Clinical Site ↗

Baylor College of Medicine

📍 Houston, TX

🔬 UDN

Harvard/MGH UDN Clinical Site ↗

Massachusetts General Hospital

📍 Boston, MA

🏥 NORD

Mayo Clinic Center for Individualized Medicine ↗

Mayo Clinic

📍 Rochester, MN

👤 Mayo Clinic Center for Individualized Medicine

🏥 NORD

UCLA Rare Disease Day Program ↗

UCLA Health

📍 Los Angeles, CA

Travel Grants

No travel grants are currently matched to Posterior urethral valve.

Search all travel grants →NORD Financial Assistance ↗

Community

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Latest news about Posterior urethral valve

Disease timeline:

New recruiting trial: Study of the Quality of Life in School Aged-children With Posterior Urethral Valves

A new clinical trial is recruiting patients for Posterior urethral valve

New recruiting trial: Efficacy and Safety of Tamsulosin for Children with Posterior Urethral Valve.

A new clinical trial is recruiting patients for Posterior urethral valve

Caregiver Resources

NORD Caregiver Resources

Support, advocacy, and financial assistance for caregivers of rare disease patients.

Mental Health Support

Rare disease caregiving can be isolating. Connect with counseling and peer support.

Family & Caregiver Grants

Financial assistance programs specifically for caregivers of rare disease patients.

Social Security Disability

Learn how rare disease patients may qualify for SSDI/SSI benefits.

Common questions about Posterior urethral valve

Are there clinical trials for Posterior urethral valve?

Yes — 3 recruiting clinical trials are currently listed for Posterior urethral valve on UniteRare. See the clinical trials section on this page for phase, sponsor, and site details sourced from ClinicalTrials.gov.

Which specialists treat Posterior urethral valve?

25 specialists and care centers treating Posterior urethral valve are listed on UniteRare, sourced from ClinicalTrials.gov principal investigators, published research, and the NPPES NPI registry.