Pituitary stalk interruption syndrome

Last reviewed

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ORPHA:95496E23.6
Who is this for?
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2Active trials2Specialists8Treatment centers

Where are you in your journey?

UniteRare data is sourced from FDA.gov, ClinicalTrials.gov, Orphanet, OMIM, and NORD.
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Overview

Also known as:

Clinical phenotype terms— hover any for plain English:

Ectopic posterior pituitaryHP:0011755Abnormality of the hypothalamus-pituitary axisHP:0000864Adrenal hypoplasiaHP:0000835Septo-optic dysplasiaHP:0100842
Orphanet ↗NORD ↗

FDA & Trial Timeline

2 events
Jun 2021Bacteriophage Therapy for Difficult-to-treat Infections: the Implementation of a Multidisciplinary Phage Task Force

Universitaire Ziekenhuizen KU Leuven — NA

TrialRECRUITING
Sep 2020Immune Homeostasis in Sepsis and Septic Shock

Charles University, Czech Republic — NA

TrialRECRUITING

Data sourced from FDA regulatory filings and ClinicalTrials.gov. Updated periodically.

Treatments

No FDA-approved treatments are currently listed for Pituitary stalk interruption syndrome.

View clinical trials →

No actively recruiting trials found for Pituitary stalk interruption syndrome at this time.

New trials open frequently. Follow this disease to get notified.

Search ClinicalTrials.gov ↗Join the Pituitary stalk interruption syndrome community →

Specialists

2 foundView all specialists →
TP
Thomas Karvunidis, MD, PhD
Pilsen, Česká Republika
Specialist

Rare Disease Specialist

JP
Jolien Onsea, PhD
Leuven
Specialist

Rare Disease Specialist

Treatment Centers

8 centers
🏥 NORD

Baylor College of Medicine Rare Disease Center

Baylor College of Medicine

📍 Houston, TX

🏥 NORD

Stanford Medicine Rare Disease Center

Stanford Medicine

📍 Stanford, CA

🔬 UDN

NIH Clinical Center Undiagnosed Diseases Program

National Institutes of Health

📍 Bethesda, MD

🔬 UDN

UCLA UDN Clinical Site

UCLA Health

📍 Los Angeles, CA

🔬 UDN

Baylor College of Medicine UDN Clinical Site

Baylor College of Medicine

📍 Houston, TX

🔬 UDN

Harvard/MGH UDN Clinical Site

Massachusetts General Hospital

📍 Boston, MA

🏥 NORD

Mayo Clinic Center for Individualized Medicine

Mayo Clinic

📍 Rochester, MN

👤 Mayo Clinic Center for Individualized Medicine

🏥 NORD

UCLA Rare Disease Day Program

UCLA Health

📍 Los Angeles, CA

Travel Grants

No travel grants are currently matched to Pituitary stalk interruption syndrome.

Search all travel grants →NORD Financial Assistance ↗

Community

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Latest news about Pituitary stalk interruption syndrome

Disease timeline:

New trial: Immune Homeostasis in Sepsis and Septic Shock

Phase NA trial recruiting. transcriptomics

New trial: Bacteriophage Therapy for Difficult-to-treat Infections: the Implementation of a Multidisciplinary P

Phase NA trial recruiting. Prospective data collection

Caregiver Resources

NORD Caregiver Resources

Support, advocacy, and financial assistance for caregivers of rare disease patients.

Mental Health Support

Rare disease caregiving can be isolating. Connect with counseling and peer support.

Family & Caregiver Grants

Financial assistance programs specifically for caregivers of rare disease patients.

Social Security Disability

Learn how rare disease patients may qualify for SSDI/SSI benefits.

Common questions about Pituitary stalk interruption syndrome

Which specialists treat Pituitary stalk interruption syndrome?

2 specialists and care centers treating Pituitary stalk interruption syndrome are listed on UniteRare, sourced from ClinicalTrials.gov principal investigators, published research, and the NPPES NPI registry.