Pituitary deficiency due to Rathke cleft cysts

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ORPHA:91350E23.0
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8Treatment centers

Where are you in your journey?

UniteRare data is sourced from FDA.gov, ClinicalTrials.gov, Orphanet, OMIM, and NORD.
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Overview

Clinical phenotype terms— hover any for plain English:

HypopituitarismHP:0040075Slow decrease in visual acuityHP:0007924Enlarged pituitary glandHP:0012505Bitemporal hemianopiaHP:0030521Abnormal kinetic perimetry testHP:0030591Anterior hypopituitarismHP:0000830PanhypopituitarismHP:0000871Optic nerve compressionHP:0007807Secondary growth hormone deficiencyHP:0008240Adrenocorticotropin deficient adrenal insufficiencyHP:0011735Oculomotor nerve palsyHP:0012246
Orphanet ↗NORD ↗

Treatments

No FDA-approved treatments are currently listed for Pituitary deficiency due to Rathke cleft cysts.

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No actively recruiting trials found for Pituitary deficiency due to Rathke cleft cysts at this time.

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No specialists are currently listed for Pituitary deficiency due to Rathke cleft cysts.

View NORD Rare Disease Centers ↗Undiagnosed Disease Network ↗

Treatment Centers

8 centers
🏥 NORD

Baylor College of Medicine Rare Disease Center

Baylor College of Medicine

📍 Houston, TX

🏥 NORD

Stanford Medicine Rare Disease Center

Stanford Medicine

📍 Stanford, CA

🔬 UDN

NIH Clinical Center Undiagnosed Diseases Program

National Institutes of Health

📍 Bethesda, MD

🔬 UDN

UCLA UDN Clinical Site

UCLA Health

📍 Los Angeles, CA

🔬 UDN

Baylor College of Medicine UDN Clinical Site

Baylor College of Medicine

📍 Houston, TX

🔬 UDN

Harvard/MGH UDN Clinical Site

Massachusetts General Hospital

📍 Boston, MA

🏥 NORD

Mayo Clinic Center for Individualized Medicine

Mayo Clinic

📍 Rochester, MN

👤 Mayo Clinic Center for Individualized Medicine

🏥 NORD

UCLA Rare Disease Day Program

UCLA Health

📍 Los Angeles, CA

Travel Grants

No travel grants are currently matched to Pituitary deficiency due to Rathke cleft cysts.

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Community

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Caregiver Resources

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