Pilomatrixoma

Last reviewed

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ORPHA:91414OMIM:132600D23.3D23.4D23.6
Who is this for?
Show terms as
17Specialists8Treatment centers

Where are you in your journey?

UniteRare data is sourced from FDA.gov, ClinicalTrials.gov, Orphanet, OMIM, and NORD.
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Overview

Also known as:

Clinical phenotype terms— hover any for plain English:

PilomatrixomaHP:0030434Neoplasm of head and neckHP:0012288Ectopic calcificationHP:0010766Anti-myeloperoxidase antibody positivityHP:0033559
Orphanet ↗OMIM ↗NORD ↗

Treatments

No FDA-approved treatments are currently listed for Pilomatrixoma.

View clinical trials →

No actively recruiting trials found for Pilomatrixoma at this time.

New trials open frequently. Follow this disease to get notified.

Search ClinicalTrials.gov ↗Join the Pilomatrixoma community →

Specialists

17 foundView all specialists →
OP
Odmara Liz Barreto-Chang, MD, PhD
Specialist
PI on 1 active trial
AZ
Adelaide Zhao
CHARLOTTESVILLE, VA
Specialist
1 Pilomatrixoma publication
SJ
Sujata Jetley
Specialist
1 Pilomatrixoma publication
JY
J Yang
Specialist
1 Pilomatrixoma publication
SK
Suraj Kedarisetty
VALLEJO, CA
Specialist
1 Pilomatrixoma publication
IF
Ilse Fernández-Reyna
Specialist
2 Pilomatrixoma publications
AA
Aileen Grace P Arriola
CAMDEN, NJ
Specialist
1 Pilomatrixoma publication
GI
Glenn Isaacson
WENATCHEE, WA
Specialist
1 Pilomatrixoma publication
SN
Shekhar Neema
Specialist
1 Pilomatrixoma publication
AK
A W Kashif
Specialist
1 Pilomatrixoma publication
BV
Biju Vasudevan
Specialist
1 Pilomatrixoma publication
SK
Sabina Khan
Specialist
1 Pilomatrixoma publication
IA
Inara Abeer
Specialist
1 Pilomatrixoma publication
MH
Musharraf Husain
Specialist
1 Pilomatrixoma publication
JM
Jesús Iván Martínez-Ortega
Specialist
2 Pilomatrixoma publications
FA
Francisco Javier Alvarez-Rubio
Specialist
2 Pilomatrixoma publications
BC
Bari B Cunningham
SAN DIEGO, CA
Specialist
PI on 1 active trial

Treatment Centers

8 centers
🏥 NORD

Baylor College of Medicine Rare Disease Center

Baylor College of Medicine

📍 Houston, TX

🏥 NORD

Stanford Medicine Rare Disease Center

Stanford Medicine

📍 Stanford, CA

🔬 UDN

NIH Clinical Center Undiagnosed Diseases Program

National Institutes of Health

📍 Bethesda, MD

🔬 UDN

UCLA UDN Clinical Site

UCLA Health

📍 Los Angeles, CA

🔬 UDN

Baylor College of Medicine UDN Clinical Site

Baylor College of Medicine

📍 Houston, TX

🔬 UDN

Harvard/MGH UDN Clinical Site

Massachusetts General Hospital

📍 Boston, MA

🏥 NORD

Mayo Clinic Center for Individualized Medicine

Mayo Clinic

📍 Rochester, MN

👤 Mayo Clinic Center for Individualized Medicine

🏥 NORD

UCLA Rare Disease Day Program

UCLA Health

📍 Los Angeles, CA

Travel Grants

No travel grants are currently matched to Pilomatrixoma.

Search all travel grants →NORD Financial Assistance ↗

Community

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Latest news about Pilomatrixoma

No recent news articles for Pilomatrixoma.

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Caregiver Resources

NORD Caregiver Resources

Support, advocacy, and financial assistance for caregivers of rare disease patients.

Mental Health Support

Rare disease caregiving can be isolating. Connect with counseling and peer support.

Family & Caregiver Grants

Financial assistance programs specifically for caregivers of rare disease patients.

Social Security Disability

Learn how rare disease patients may qualify for SSDI/SSI benefits.

Common questions about Pilomatrixoma

Which specialists treat Pilomatrixoma?

17 specialists and care centers treating Pilomatrixoma are listed on UniteRare, sourced from ClinicalTrials.gov principal investigators, published research, and the NPPES NPI registry.