Overview
Phyllodes tumor of the prostate is an extremely rare type of tumor that grows in the prostate gland, which is a small gland in men located below the bladder. This tumor is also sometimes called a cystosarcoma phyllodes of the prostate or a phyllodes-type atypical hyperplasia of the prostate. It gets its name from the Greek word for 'leaf,' because under a microscope the tumor has a leaf-like pattern. These tumors are made up of two types of tissue growing together: the glandular tissue of the prostate and the surrounding connective tissue (called stroma). This combination makes them different from the more common types of prostate cancer. Phyllodes tumors of the prostate can behave in different ways. Some grow slowly and stay in one place, while others can be more aggressive and spread to nearby tissues or other parts of the body. Because of this, doctors classify them as benign (non-cancerous), borderline, or malignant (cancerous). Symptoms often include difficulty urinating, a feeling that the bladder is not fully empty, blood in the urine, or pelvic discomfort. Treatment usually involves surgery to remove the tumor, and in some cases the entire prostate may need to be removed. Because this tumor is so rare, there are no standard chemotherapy or radiation protocols specifically designed for it. Management decisions are often made on a case-by-case basis by a team of specialists. Regular follow-up is very important because these tumors can come back after treatment.
Also known as:
Key symptoms:
Difficulty starting or stopping urinationWeak or slow urine streamFeeling that the bladder does not empty completelyNeeding to urinate more often, especially at nightBlood in the urineBlood in semenPelvic pain or discomfortLower back painPainful urinationA feeling of pressure or fullness in the lower abdomen
Sporadic
Usually appears on its own, not inherited from a parent
Adult
Begins in adulthood (age 18 or older)
Treatments
No FDA-approved treatments are currently listed for Phyllodes tumor of the prostate.
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Specialists
View all specialists →No specialists are currently listed for Phyllodes tumor of the prostate.
Treatment Centers
8 centersBaylor College of Medicine Rare Disease Center ↗
Baylor College of Medicine
📍 Houston, TX
🏥 NORDStanford Medicine Rare Disease Center ↗
Stanford Medicine
📍 Stanford, CA
🔬 UDNNIH Clinical Center Undiagnosed Diseases Program ↗
National Institutes of Health
📍 Bethesda, MD
🔬 UDNUCLA UDN Clinical Site ↗
UCLA Health
📍 Los Angeles, CA
🔬 UDNBaylor College of Medicine UDN Clinical Site ↗
Baylor College of Medicine
📍 Houston, TX
🔬 UDNHarvard/MGH UDN Clinical Site ↗
Massachusetts General Hospital
📍 Boston, MA
🏥 NORDMayo Clinic Center for Individualized Medicine ↗
Mayo Clinic
📍 Rochester, MN
👤 Mayo Clinic Center for Individualized Medicine
🏥 NORDUCLA Rare Disease Day Program ↗
UCLA Health
📍 Los Angeles, CA
Travel Grants
No travel grants are currently matched to Phyllodes tumor of the prostate.
Community
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Caregiver Resources
NORD Caregiver Resources
Support, advocacy, and financial assistance for caregivers of rare disease patients.
Mental Health Support
Rare disease caregiving can be isolating. Connect with counseling and peer support.
Family & Caregiver Grants
Financial assistance programs specifically for caregivers of rare disease patients.
Social Security Disability
Learn how rare disease patients may qualify for SSDI/SSI benefits.
Questions for your doctor
Bring these to your next appointment
- Q1.Is my tumor benign, borderline, or malignant, and what does that mean for my treatment and outlook?,Has the tumor spread beyond the prostate, and how will you determine this?,What type of surgery do you recommend, and what are the risks of urinary or sexual side effects?,How often will I need follow-up scans or tests after treatment, and for how long?,Are there any clinical trials or specialized centers I should consider for this rare tumor?,What signs of recurrence should I watch for, and when should I call you immediately?,Should I see a genetic counselor, or is there any reason to think this could affect other family members?
Common questions about Phyllodes tumor of the prostate
What is Phyllodes tumor of the prostate?
Phyllodes tumor of the prostate is an extremely rare type of tumor that grows in the prostate gland, which is a small gland in men located below the bladder. This tumor is also sometimes called a cystosarcoma phyllodes of the prostate or a phyllodes-type atypical hyperplasia of the prostate. It gets its name from the Greek word for 'leaf,' because under a microscope the tumor has a leaf-like pattern. These tumors are made up of two types of tissue growing together: the glandular tissue of the prostate and the surrounding connective tissue (called stroma). This combination makes them different
How is Phyllodes tumor of the prostate inherited?
Phyllodes tumor of the prostate follows a sporadic inheritance pattern. Genetic counseling can help families understand recurrence risk and testing options.
At what age does Phyllodes tumor of the prostate typically begin?
Typical onset of Phyllodes tumor of the prostate is adult. Age of onset can vary across affected individuals.