Persistent left superior vena cava connecting to the roof of left-sided atrium

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ORPHA:99111Q26.1
Who is this for?
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1FDA treatments8Treatment centers

Where are you in your journey?

UniteRare data is sourced from FDA.gov, ClinicalTrials.gov, Orphanet, OMIM, and NORD.
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Overview

Also known as:

Orphanet ↗NORD ↗

FDA & Trial Timeline

1 event
May 1987

Pentaspan: FDA approved

As an adjunct in leukapheresis to improve the harvesting and increase the yield of leukocytes by centrifugal means.

FDAcompleted

Data sourced from FDA regulatory filings and ClinicalTrials.gov. Updated periodically.

Treatments

1 available

Pentaspan

Pentastarch· DuPont PharmaceuticalsOrphan Drug

No actively recruiting trials found for Persistent left superior vena cava connecting to the roof of left-sided atrium at this time.

New trials open frequently. Follow this disease to get notified.

Search ClinicalTrials.gov ↗Join the Persistent left superior vena cava connecting to the roof of left-sided atrium community →

No specialists are currently listed for Persistent left superior vena cava connecting to the roof of left-sided atrium.

View NORD Rare Disease Centers ↗Undiagnosed Disease Network ↗

Treatment Centers

8 centers
🏥 NORD

Baylor College of Medicine Rare Disease Center

Baylor College of Medicine

📍 Houston, TX

🏥 NORD

Stanford Medicine Rare Disease Center

Stanford Medicine

📍 Stanford, CA

🔬 UDN

NIH Clinical Center Undiagnosed Diseases Program

National Institutes of Health

📍 Bethesda, MD

🔬 UDN

UCLA UDN Clinical Site

UCLA Health

📍 Los Angeles, CA

🔬 UDN

Baylor College of Medicine UDN Clinical Site

Baylor College of Medicine

📍 Houston, TX

🔬 UDN

Harvard/MGH UDN Clinical Site

Massachusetts General Hospital

📍 Boston, MA

🏥 NORD

Mayo Clinic Center for Individualized Medicine

Mayo Clinic

📍 Rochester, MN

👤 Mayo Clinic Center for Individualized Medicine

🏥 NORD

UCLA Rare Disease Day Program

UCLA Health

📍 Los Angeles, CA

Travel Grants

No travel grants are currently matched to Persistent left superior vena cava connecting to the roof of left-sided atrium.

Search all travel grants →NORD Financial Assistance ↗

Community

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Latest news about Persistent left superior vena cava connecting to the roof of left-sided atrium

No recent news articles for Persistent left superior vena cava connecting to the roof of left-sided atrium.

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Caregiver Resources

NORD Caregiver Resources

Support, advocacy, and financial assistance for caregivers of rare disease patients.

Mental Health Support

Rare disease caregiving can be isolating. Connect with counseling and peer support.

Family & Caregiver Grants

Financial assistance programs specifically for caregivers of rare disease patients.

Social Security Disability

Learn how rare disease patients may qualify for SSDI/SSI benefits.

Common questions about Persistent left superior vena cava connecting to the roof of left-sided atrium

What treatment and support options exist for Persistent left superior vena cava connecting to the roof of left-sided atrium?

1 patient support program are currently tracked on UniteRare for Persistent left superior vena cava connecting to the roof of left-sided atrium. See the treatments and support programs sections for copay assistance, eligibility, and contact details.