Peripheral pulmonary stenosis

Last reviewed

🖨 Print for my doctorAdvocacy Hub →
ORPHA:99084Q25.6
Who is this for?
Show terms as
1Active trials19Specialists8Treatment centers

Where are you in your journey?

UniteRare data is sourced from FDA.gov, ClinicalTrials.gov, Orphanet, OMIM, and NORD.
Report missing data

Overview

Also known as:

Orphanet ↗NORD ↗

FDA & Trial Timeline

1 event
Mar 2018BeGrow Study to Treat Pulmonary Artery (PA) Stenosis in Newborns and Infants

Bentley InnoMed GmbH — NA

TrialACTIVE NOT RECRUITING

Data sourced from FDA regulatory filings and ClinicalTrials.gov. Updated periodically.

Treatments

No FDA-approved treatments are currently listed for Peripheral pulmonary stenosis.

1 clinical trialare actively recruiting — trials can provide access to cutting-edge therapies.

View clinical trials →

Clinical Trials

1 recruitingView all trials with filters →
N/A1 trial
BeGrow Study to Treat Pulmonary Artery (PA) Stenosis in Newborns and Infants
N/A
Active
PI: Oliver Kretschmar, Prof.Dr.med (Kinderspital Zürich, Pädiatrische Kardiologie) · Sites: Vienna; Belgrade +1 more

Specialists

19 foundView all specialists →
MM
Martin Schneider, MD
Specialist
PI on 1 active trial
SS
Saori Sawai
Specialist
1 Peripheral pulmonary stenosis publication
AC
Ayako Chida-Nagai
Specialist
1 Peripheral pulmonary stenosis publication
HA
Hiroyuki Akagawa
Specialist
1 Peripheral pulmonary stenosis publication
YM
Yue-Jiao Ma
Specialist
1 Peripheral pulmonary stenosis publication
SY
Satoshi Yakuwa
Specialist
1 Peripheral pulmonary stenosis publication
JM
Jun Muneuchi
Specialist
1 Peripheral pulmonary stenosis publication
KY
Kazushi Yasuda
Specialist
1 Peripheral pulmonary stenosis publication
HY
Hirokuni Yamazawa
Specialist
1 Peripheral pulmonary stenosis publication
TY
Toshiyuki Yamamoto
Specialist
1 Peripheral pulmonary stenosis publication
ET
Emi Takakuwa
Specialist
1 Peripheral pulmonary stenosis publication
UT
Utano Tomaru
Specialist
1 Peripheral pulmonary stenosis publication
YF
Yoshiyuki Furutani
Specialist
1 Peripheral pulmonary stenosis publication
TK
Tatsuya Kato
Specialist
1 Peripheral pulmonary stenosis publication
KI
Kei Inai
Specialist
1 Peripheral pulmonary stenosis publication
GH
Gen Harada
Specialist
1 Peripheral pulmonary stenosis publication
OK
Oliver Kretschmar
Specialist
PI on 1 active trial
AM
Audrey Marshall
Specialist
PI on 1 active trial

Treatment Centers

8 centers
🏥 NORD

Baylor College of Medicine Rare Disease Center

Baylor College of Medicine

📍 Houston, TX

🏥 NORD

Stanford Medicine Rare Disease Center

Stanford Medicine

📍 Stanford, CA

🔬 UDN

NIH Clinical Center Undiagnosed Diseases Program

National Institutes of Health

📍 Bethesda, MD

🔬 UDN

UCLA UDN Clinical Site

UCLA Health

📍 Los Angeles, CA

🔬 UDN

Baylor College of Medicine UDN Clinical Site

Baylor College of Medicine

📍 Houston, TX

🔬 UDN

Harvard/MGH UDN Clinical Site

Massachusetts General Hospital

📍 Boston, MA

🏥 NORD

Mayo Clinic Center for Individualized Medicine

Mayo Clinic

📍 Rochester, MN

👤 Mayo Clinic Center for Individualized Medicine

🏥 NORD

UCLA Rare Disease Day Program

UCLA Health

📍 Los Angeles, CA

Travel Grants

No travel grants are currently matched to Peripheral pulmonary stenosis.

Search all travel grants →NORD Financial Assistance ↗

Community

Open Peripheral pulmonary stenosisForum →

No community posts yet. Be the first to share your experience with Peripheral pulmonary stenosis.

Start the conversation →

Latest news about Peripheral pulmonary stenosis

No recent news articles for Peripheral pulmonary stenosis.

Follow this condition to be notified when news becomes available.

Caregiver Resources

NORD Caregiver Resources

Support, advocacy, and financial assistance for caregivers of rare disease patients.

Mental Health Support

Rare disease caregiving can be isolating. Connect with counseling and peer support.

Family & Caregiver Grants

Financial assistance programs specifically for caregivers of rare disease patients.

Social Security Disability

Learn how rare disease patients may qualify for SSDI/SSI benefits.

Common questions about Peripheral pulmonary stenosis

Are there clinical trials for Peripheral pulmonary stenosis?

Yes — 1 recruiting clinical trial is currently listed for Peripheral pulmonary stenosis on UniteRare. See the clinical trials section on this page for phase, sponsor, and site details sourced from ClinicalTrials.gov.

Which specialists treat Peripheral pulmonary stenosis?

19 specialists and care centers treating Peripheral pulmonary stenosis are listed on UniteRare, sourced from ClinicalTrials.gov principal investigators, published research, and the NPPES NPI registry.