Oromandibular dystonia

Last reviewed

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ORPHA:93958G24.4
Who is this for?
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5Specialists8Treatment centers

Where are you in your journey?

UniteRare data is sourced from FDA.gov, ClinicalTrials.gov, Orphanet, OMIM, and NORD.
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Overview

Clinical phenotype terms— hover any for plain English:

Abnormal mandible morphologyHP:0000277Impaired masticationHP:0005216Abnormality of the temporomandibular jointHP:0010754Abnormal lip morphologyHP:0000159Facial grimacingHP:0000273Hyperkinetic movementsHP:0002487BruxismHP:0003763Generalized dystoniaHP:0007325Laryngeal dystoniaHP:0012049Lingual dystoniaHP:0031008
Orphanet ↗NORD ↗

Treatments

No FDA-approved treatments are currently listed for Oromandibular dystonia.

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No actively recruiting trials found for Oromandibular dystonia at this time.

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Specialists

5 foundView all specialists →
JM
Jill Ostrem, M.D.
SAN FRANCISCO, CA
Specialist
PI on 1 active trial
SD
Stewart A Factor, DO
ATLANTA, GA
Specialist
PI on 1 active trial
AM
Alexandre Kreisler, MD
Specialist
PI on 1 active trial

Treatment Centers

8 centers
🏥 NORD

Baylor College of Medicine Rare Disease Center

Baylor College of Medicine

📍 Houston, TX

🏥 NORD

Stanford Medicine Rare Disease Center

Stanford Medicine

📍 Stanford, CA

🔬 UDN

NIH Clinical Center Undiagnosed Diseases Program

National Institutes of Health

📍 Bethesda, MD

🔬 UDN

UCLA UDN Clinical Site

UCLA Health

📍 Los Angeles, CA

🔬 UDN

Baylor College of Medicine UDN Clinical Site

Baylor College of Medicine

📍 Houston, TX

🔬 UDN

Harvard/MGH UDN Clinical Site

Massachusetts General Hospital

📍 Boston, MA

🏥 NORD

Mayo Clinic Center for Individualized Medicine

Mayo Clinic

📍 Rochester, MN

👤 Mayo Clinic Center for Individualized Medicine

🏥 NORD

UCLA Rare Disease Day Program

UCLA Health

📍 Los Angeles, CA

Travel Grants

No travel grants are currently matched to Oromandibular dystonia.

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Community

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Latest news about Oromandibular dystonia

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Caregiver Resources

NORD Caregiver Resources

Support, advocacy, and financial assistance for caregivers of rare disease patients.

Mental Health Support

Rare disease caregiving can be isolating. Connect with counseling and peer support.

Family & Caregiver Grants

Financial assistance programs specifically for caregivers of rare disease patients.

Social Security Disability

Learn how rare disease patients may qualify for SSDI/SSI benefits.

Common questions about Oromandibular dystonia

Which specialists treat Oromandibular dystonia?

5 specialists and care centers treating Oromandibular dystonia are listed on UniteRare, sourced from ClinicalTrials.gov principal investigators, published research, and the NPPES NPI registry.